Dear Readers,
After our wonderful stint in Wisconsin with the hyperbaric treatment, I found out about an organizaation called Act-Today and they give out grants to families who have kids with Autism. I applied back in July for a sizable grant of $14,900 to help purchase a home hyperbaric chamber for the boys and my two nephews. After waiting for almost 5 months we got our answer. The organization would not be able to Grant us the money for Hyperbarics due to the fact that until they find more evidance of it's affectivness on children with autism they want to spend their money on other proven therepies. The boys benifited so much from the Hyperbarics and I was so hopful that this Grant would go through. How can i raise the money for this? I don't have time to do fund raisers and frankly I don't have the energy. I wish I could find someone or some company that would be willing to donate a chamber or the money.
Autism affects everyone that has it Differently. I feel like I am fighting an up hill battle and I found a wonderful tool to help the boys and I don't know how to get it. It is so frustraiting, it's like going to war and having all these weapons, which all work in there own way, but what you really need to get ahead is a freakin missle launcher. I saw the the effects Hyperbarics had on my kids, specially Kadin, I feel like I got to use a missle launcher for one day and then it was taken away. I am blogging because I hope some random stranger will read this post and have an idea. So many Great things are happening with Kadin I feel like each day he if coming more and more awake and presant. The great things i saw in Wisconsin are continuing and with the new addition of Truman (Kadin's service dog) I feel greater things are to come. I know if we could get a home chamber the boys would continue to benifit from it.
Dear Lord, you know these things weigh heavely on my heart and mind continue living in me and speaking to my heart. Keep my family in your hands.
Wednesday, December 21, 2011
Monday, September 19, 2011
Brief History of How Truman came to be in our family
Dear Readers,
Four years ago if you were to ask me, “Do you think you family will ever get a dog?” I would have said something along the lines of, “ When Hell freezes over maybe!” I was a mom with a 4 year old a 3 year old and a 2 year old. At time’s I thought that I was going to go crazy, my youngest son was just assessed by the Public school system and found to fall on the spectrum of Autism and my 3 year old had, one year prior, been assessed and found to be on the spectrum. So here I am putting my two little boys on a public school bus to go to school every day for early intervention in hopes that we could in some way pull them out of their Autistic world. Soon after Kadin started going to school I had looked into the possibility of putting him in private O.T. and speech at Children’s Development and Rehabilitation in Saint Paul, I had been taking Tanner there for sometime and he seemed to be responding to the extra therapies. We started taking Kadin to Children’s and it is there that our journey to Can Do Canines and Truman really began. Kadin’s O.T. had asked me if I would be interested in trying a therapy dog at Kadin’s appointments. I told her that I thought that would be fine since he seemed to be extremely drawn to animals. I believe the whole therapy dog program was fairly new there and we were paired with a beautiful dog by the of Sasha. It took about 3 sessions with Sasha before Kadin started to interact with her. This was the first time that I had seen Kadin show interest in dogs. Sasha was a pure white Samoyed and Kadin loved to lay on her coat and run his fingers through her long hair. I noticed this to be very calming for him and eventually Sasha became more and more apart of the each session. Our family life was a whirlwind of therapies and school and meeting etc. But at some point during the craziness of it all the seed was planted and the thought of a dog crept into my mind. At this same time Kadin’s PCA had handed me a book she had just picked up by the name “A friend Like Henry” I read the book while we were on vacation that summer. I couldn’t help but see the similarities between Kadin and the little boy in the book. I believe it was shortly after reading the book that, while at Kadin’s O.T. apt., I asked his therapist if she knew if there was such a thing as a Autism Service dog. I believe she said she would look into it and in what seemed a short while down the road she handed me an article about a little boy who had received an Autism Service dog from an organization by the name of Hearing and Service Dogs of MN. I read the article and spoke with my husband and I filled out an application and sent it in. It did not seem long before we met with a trainer from the organization by the name of Julianne. A few weeks after our meeting we received a letter stating that Kadin was accepted into their program. Now that we were accepted it was time to hurry up and wait. The first year of waiting was very hard and Kadin’s behaviors started to escalate. I Remember on the anniversary of his acceptance I wrote an email to the organization and again stated that we were really excited about getting a dog etc. I was told it would be at least another year and so we got ready to wait again. The second year and a half went by fast we were involved in so much and now all three of my children were in school and our lives for the most part had gone on as before. In February of this year I received the phone call we had been waiting for, for so long. “Marjorie, I think we have a dog for Kadin, I have to tweak a few things but I think he will be ready in a couple months.” I hung up the phone and called my mom, my husband, brothers and sisters and close friends. I couldn’t believe that this was finally going to happen, I cried a lot mostly I think from the stress of waiting and the feeling of the thought that our family and Kadin would have a chance to do things that we couldn’t do before. This dog would change our lives not just Kadin’s. As it turned out the dog that they had in mind turned up to have a medical issue and it needed to be re assigned. I met Truman on July 7th, 2011 and from the moment I saw him I was amazed by his eye contact and his calm stature. I agreed to work with him and I think we bonded very quickly. Truman was placed in our home August 11th, 2011 and the following week we began Kadin’s training.
September 17th,2011 we are certified as a team and now are allowed to take Truman with us were ever we go. This has been such a long journey and now I hope to get on with our lives and see the great things that are sure to come.
Much love!
Four years ago if you were to ask me, “Do you think you family will ever get a dog?” I would have said something along the lines of, “ When Hell freezes over maybe!” I was a mom with a 4 year old a 3 year old and a 2 year old. At time’s I thought that I was going to go crazy, my youngest son was just assessed by the Public school system and found to fall on the spectrum of Autism and my 3 year old had, one year prior, been assessed and found to be on the spectrum. So here I am putting my two little boys on a public school bus to go to school every day for early intervention in hopes that we could in some way pull them out of their Autistic world. Soon after Kadin started going to school I had looked into the possibility of putting him in private O.T. and speech at Children’s Development and Rehabilitation in Saint Paul, I had been taking Tanner there for sometime and he seemed to be responding to the extra therapies. We started taking Kadin to Children’s and it is there that our journey to Can Do Canines and Truman really began. Kadin’s O.T. had asked me if I would be interested in trying a therapy dog at Kadin’s appointments. I told her that I thought that would be fine since he seemed to be extremely drawn to animals. I believe the whole therapy dog program was fairly new there and we were paired with a beautiful dog by the of Sasha. It took about 3 sessions with Sasha before Kadin started to interact with her. This was the first time that I had seen Kadin show interest in dogs. Sasha was a pure white Samoyed and Kadin loved to lay on her coat and run his fingers through her long hair. I noticed this to be very calming for him and eventually Sasha became more and more apart of the each session. Our family life was a whirlwind of therapies and school and meeting etc. But at some point during the craziness of it all the seed was planted and the thought of a dog crept into my mind. At this same time Kadin’s PCA had handed me a book she had just picked up by the name “A friend Like Henry” I read the book while we were on vacation that summer. I couldn’t help but see the similarities between Kadin and the little boy in the book. I believe it was shortly after reading the book that, while at Kadin’s O.T. apt., I asked his therapist if she knew if there was such a thing as a Autism Service dog. I believe she said she would look into it and in what seemed a short while down the road she handed me an article about a little boy who had received an Autism Service dog from an organization by the name of Hearing and Service Dogs of MN. I read the article and spoke with my husband and I filled out an application and sent it in. It did not seem long before we met with a trainer from the organization by the name of Julianne. A few weeks after our meeting we received a letter stating that Kadin was accepted into their program. Now that we were accepted it was time to hurry up and wait. The first year of waiting was very hard and Kadin’s behaviors started to escalate. I Remember on the anniversary of his acceptance I wrote an email to the organization and again stated that we were really excited about getting a dog etc. I was told it would be at least another year and so we got ready to wait again. The second year and a half went by fast we were involved in so much and now all three of my children were in school and our lives for the most part had gone on as before. In February of this year I received the phone call we had been waiting for, for so long. “Marjorie, I think we have a dog for Kadin, I have to tweak a few things but I think he will be ready in a couple months.” I hung up the phone and called my mom, my husband, brothers and sisters and close friends. I couldn’t believe that this was finally going to happen, I cried a lot mostly I think from the stress of waiting and the feeling of the thought that our family and Kadin would have a chance to do things that we couldn’t do before. This dog would change our lives not just Kadin’s. As it turned out the dog that they had in mind turned up to have a medical issue and it needed to be re assigned. I met Truman on July 7th, 2011 and from the moment I saw him I was amazed by his eye contact and his calm stature. I agreed to work with him and I think we bonded very quickly. Truman was placed in our home August 11th, 2011 and the following week we began Kadin’s training.
September 17th,2011 we are certified as a team and now are allowed to take Truman with us were ever we go. This has been such a long journey and now I hope to get on with our lives and see the great things that are sure to come.
Much love!
Wednesday, August 17, 2011
A whirlwind of a ride!
Dear Readers,
It has been to long since I last wrote and I want to let you the great things that have and are happening with Kadin and Truman.
Truman arrived at our house on Thursday Aug. 11th at 10am. We met Dora (the trainer) out side aloong with the channel 9 news reporter and the camera man. Truman was very excited and Kadin was a little hesitant to go up to him. (It usually takes Kadin a while to warm up to a dog he has just met.) I crossed my fingers and prayed that this meeting would go well. We hung out outside for a bit then we proceeded inside to show Truman his new pad! Kadin and Truman seemed to get more and more excited as the meeting went on. We sat in the boys room and we gave Truman some of his new toys. I wish I would have taken a picture of Kadin's face, his smile was so big and his laugh was unforgetable. Trumans favorite toy,aside from the tennis ball, is the squeeky pheasant bird Kadin got from his aunt to give to his new dog when he arrived. While Truman was squeeking his new toy Kadin got down next to him and slowly layed over Trumans belly. This was the true test Truman didn't even flinch! So far the interview/ meeting with Truman was going beyond good and the reporter and the rest of us were thrilled! The next test was putting Kadin's belt on and clipping it to Truman red Service dog vest. To be honest I thought for sure Kadin would through a fit if I attemped to but the belt around his waste, I got the belt on and Kadin did not like it at all BUT to everyone's surprise he walked down the stairs to proceed outside to take his first walk with Truman. I clicked the tether onto Trumans vest and we proceeded to walk down the sidewalk. They both did GREAT!! Kadin did cry and fuss the whole time but he pushed through and followed my direction and held onto the handle on the vest! We finished up the interview and then everyone left but Truman!! Yah! he is finally here in our home!! The past several days we have been working on the bonding between the two. Kadin is the only one allowed to feed Truman and give him treats. Truman also slept in the boys bed the first night and every night since. Last Saturday night it was just Kadi and I at home and He and Truman has some real quality time, I even had to give Truman a break from Kadin because Kadin wouldn't stop trying to lay on him and grabbing his legs. The best part of Saturday night was, Kadin and Truman slept all night in there room and this has not happened for a very long time. Kadin most always wakes up during the night and comes in our room. Truman has even made his way into my husbands heart and I love seeing Bret play with him. Kadin has also been doing a great job with feeding Truman, he use to cry and fuss when we would make him come feed him, but now in the morning I say, "Kadin, Truman wants to eat breakfast. Please come feed him." and Kadin will put down his legos (which is unheard of) and walk quietly into the kitchen and give him his food. The daily practice walks are also getting better. Words cannot express the joy in my heart to see Kadin with his new helper and friend. Our family is so greatful for this huge blessing that God has brought into our lives!
It has been to long since I last wrote and I want to let you the great things that have and are happening with Kadin and Truman.
Truman arrived at our house on Thursday Aug. 11th at 10am. We met Dora (the trainer) out side aloong with the channel 9 news reporter and the camera man. Truman was very excited and Kadin was a little hesitant to go up to him. (It usually takes Kadin a while to warm up to a dog he has just met.) I crossed my fingers and prayed that this meeting would go well. We hung out outside for a bit then we proceeded inside to show Truman his new pad! Kadin and Truman seemed to get more and more excited as the meeting went on. We sat in the boys room and we gave Truman some of his new toys. I wish I would have taken a picture of Kadin's face, his smile was so big and his laugh was unforgetable. Trumans favorite toy,aside from the tennis ball, is the squeeky pheasant bird Kadin got from his aunt to give to his new dog when he arrived. While Truman was squeeking his new toy Kadin got down next to him and slowly layed over Trumans belly. This was the true test Truman didn't even flinch! So far the interview/ meeting with Truman was going beyond good and the reporter and the rest of us were thrilled! The next test was putting Kadin's belt on and clipping it to Truman red Service dog vest. To be honest I thought for sure Kadin would through a fit if I attemped to but the belt around his waste, I got the belt on and Kadin did not like it at all BUT to everyone's surprise he walked down the stairs to proceed outside to take his first walk with Truman. I clicked the tether onto Trumans vest and we proceeded to walk down the sidewalk. They both did GREAT!! Kadin did cry and fuss the whole time but he pushed through and followed my direction and held onto the handle on the vest! We finished up the interview and then everyone left but Truman!! Yah! he is finally here in our home!! The past several days we have been working on the bonding between the two. Kadin is the only one allowed to feed Truman and give him treats. Truman also slept in the boys bed the first night and every night since. Last Saturday night it was just Kadi and I at home and He and Truman has some real quality time, I even had to give Truman a break from Kadin because Kadin wouldn't stop trying to lay on him and grabbing his legs. The best part of Saturday night was, Kadin and Truman slept all night in there room and this has not happened for a very long time. Kadin most always wakes up during the night and comes in our room. Truman has even made his way into my husbands heart and I love seeing Bret play with him. Kadin has also been doing a great job with feeding Truman, he use to cry and fuss when we would make him come feed him, but now in the morning I say, "Kadin, Truman wants to eat breakfast. Please come feed him." and Kadin will put down his legos (which is unheard of) and walk quietly into the kitchen and give him his food. The daily practice walks are also getting better. Words cannot express the joy in my heart to see Kadin with his new helper and friend. Our family is so greatful for this huge blessing that God has brought into our lives!
Friday, August 05, 2011
A Few days until Kadin meets Truman!!
Dear Readers,
So much has been going on since I last wrote. We are just finishing up our Vacation up north at the cabin and we will be homeward bound tomorrow afternoon. We have had a beautiful week at the lake and I can say that I am ready to come home. Truman (Kadin's Service dog) is moving in sometime next week and our family, after almost 3 years of waiting, is very very excited to meet our new family member! For the past several weeks I have felt like I was "nesting". I re-painted the hall, the kids room, and had carpet clearners come to the house last friday. I don't think our house has been cleaner than it is right now. Last Thursday, Ashtyn, Tanner and I went to PetCo and bought the last few things we needed for Truman. God started this journey for us over 3 years ago, he put the book "A friend Like Henry" in my hands and that lead us down the road to Truman. I said many years ago, "My 33year will be the best year of my life." I think I said this mostly because 3 has been my lucky number ever since I can remember. I do now believe this year has, so far, been just that. We got to try Hyperbarics for the boys, which Kadin responded so well to and we are now about to recieve his Service Dog. Eight months left of this 33rd year and I hope there are more great things in store for our family. I want to leave you with two verses from Psalm 37:4-5
Delight thyself also in the LORD; and he shall give thee the desires of thine heart.
Commit thy way unto the LORD; trust also in him; and he shall bring it to pass.
:)
So much has been going on since I last wrote. We are just finishing up our Vacation up north at the cabin and we will be homeward bound tomorrow afternoon. We have had a beautiful week at the lake and I can say that I am ready to come home. Truman (Kadin's Service dog) is moving in sometime next week and our family, after almost 3 years of waiting, is very very excited to meet our new family member! For the past several weeks I have felt like I was "nesting". I re-painted the hall, the kids room, and had carpet clearners come to the house last friday. I don't think our house has been cleaner than it is right now. Last Thursday, Ashtyn, Tanner and I went to PetCo and bought the last few things we needed for Truman. God started this journey for us over 3 years ago, he put the book "A friend Like Henry" in my hands and that lead us down the road to Truman. I said many years ago, "My 33year will be the best year of my life." I think I said this mostly because 3 has been my lucky number ever since I can remember. I do now believe this year has, so far, been just that. We got to try Hyperbarics for the boys, which Kadin responded so well to and we are now about to recieve his Service Dog. Eight months left of this 33rd year and I hope there are more great things in store for our family. I want to leave you with two verses from Psalm 37:4-5
Delight thyself also in the LORD; and he shall give thee the desires of thine heart.
Commit thy way unto the LORD; trust also in him; and he shall bring it to pass.
:)
Wednesday, July 20, 2011
Training Went Great Today!
Dear Readers,
I had my second training session with Truman today. Dora, the trainer, met me at Target on University and she proceeded to show me how and what to do while in a store setting. Truman did wonderful! I love when I am talking to him and he looks into my eyes for direction. We took him down the Dog food isle and the toy isle. I have to say I was impressed, I could tell he wanted to sniff the food and crab a toy out of one of the bins but he faithfully obeyed my que's. I also feel a lot more confident in giving the commands. I guess you could say Dora and Truman are training me. *LOL*
Dora also told me that intead of placing Truman next week she is going to place him as soon as we get back from vacation which is going to be around Aug.8th. The kids room has been re-painted and I also repainted the hallway outside their room. I have been junking out cleaning up and getting everything just right for our new family member. We feel so blessed!
I had my second training session with Truman today. Dora, the trainer, met me at Target on University and she proceeded to show me how and what to do while in a store setting. Truman did wonderful! I love when I am talking to him and he looks into my eyes for direction. We took him down the Dog food isle and the toy isle. I have to say I was impressed, I could tell he wanted to sniff the food and crab a toy out of one of the bins but he faithfully obeyed my que's. I also feel a lot more confident in giving the commands. I guess you could say Dora and Truman are training me. *LOL*
Dora also told me that intead of placing Truman next week she is going to place him as soon as we get back from vacation which is going to be around Aug.8th. The kids room has been re-painted and I also repainted the hallway outside their room. I have been junking out cleaning up and getting everything just right for our new family member. We feel so blessed!
Wednesday, July 13, 2011
Truman seems to like me!
Dear Readers,
Yesterday was my first day of Training with Kadin's dog. I learned how to clean ears, clip toe nails (which I may leave up to the vet) and I learned many commands and I practiced walking with him. He did so good and I gave him lots of praise and dog treats. Next week on Tues. I am going to meet the Trainer and Truman at the Target on University for our "store" training. I am so excited! I love working with this dog and I really feel like I am bonding with him already. I got to take pictures of him and I couldn't wait to show the kids and Bret. I also showed anyone else that I saw. We have waited so long for this dog and now we are in the throws of training. I also feel like I am "Nesting" you know like when a woman is about to have a baby she cleans the house non stop. I have been cleaning and junking out and today I put a second coat of spackle on the hallway wall and then sanded it and repainted. Next project is the kids room I already have the paint and am excited to start that project in the next few days. I just know this dog is going to be so great for our family and Kadin is going to just love him!
Yesterday was my first day of Training with Kadin's dog. I learned how to clean ears, clip toe nails (which I may leave up to the vet) and I learned many commands and I practiced walking with him. He did so good and I gave him lots of praise and dog treats. Next week on Tues. I am going to meet the Trainer and Truman at the Target on University for our "store" training. I am so excited! I love working with this dog and I really feel like I am bonding with him already. I got to take pictures of him and I couldn't wait to show the kids and Bret. I also showed anyone else that I saw. We have waited so long for this dog and now we are in the throws of training. I also feel like I am "Nesting" you know like when a woman is about to have a baby she cleans the house non stop. I have been cleaning and junking out and today I put a second coat of spackle on the hallway wall and then sanded it and repainted. Next project is the kids room I already have the paint and am excited to start that project in the next few days. I just know this dog is going to be so great for our family and Kadin is going to just love him!
Monday, July 11, 2011
Hyperbarics Story on Channel 9 News
Dear Readers,
For those of you who are interested, the story that was done on Kadin and the boys by Fox news is going to air this Wednesday at 9pm.
Also, I am going to have my first training session with Truman tomorrow afternoon. I will let you all know how it goes.
Thanks to all of you that have followed us this far and many thanks for all the support and prayers!!
For those of you who are interested, the story that was done on Kadin and the boys by Fox news is going to air this Wednesday at 9pm.
Also, I am going to have my first training session with Truman tomorrow afternoon. I will let you all know how it goes.
Thanks to all of you that have followed us this far and many thanks for all the support and prayers!!
Friday, July 08, 2011
Meeting Truman
Dear Readers,
It has been a nice break the last few weeks not blogging everyday but I am now ready to start blogging about this chapter in our family's life. Tuesday I recived a call from Can-Do-Canines, I was very excited to learn that they wanted me to meet a dog by the name of "Truman" who is a black Labrador. I set a time with the women to drive out to New Hope to the facility for Thursday at 1pm. Thrusday came and I got out my GPS and found my way to Can-Do-Canines new facility. Dora, the trainer, met me in the loby and we proceeded to one of the big training rooms. We walked in the room and she told me to take a seat and that she would go get Truman from the Kennal. I was so excited to meet him and I prayed the whole way to the facility. Truman came in the door and walked straight up to me. Dora gave me some dog treats and we sat and talked and Truman sat right by me without even trying to go to his trainer. The first thing I was aware of with Truman was his GREAT eye contact with me. When I talked to him he just staired into my eyes. I kind of laughed because I have never had that kind of experiance with a dog. I said, "Wow, Truman Kadin doesn't even do that!" I practiced walking him and giving some basic commands. Over all it went very well and towards the end Dora said, "So what do you think?" I said, "I really like him and I have not had any negative feelings towards this match so, Yes, I would like to work with him." Dora got the paper work and I filled it all out and we scheduled our first Training session for Tues. July 12th. I am looking forward our next meeting! I will keep you all posted on the progress.
Goodnight!
It has been a nice break the last few weeks not blogging everyday but I am now ready to start blogging about this chapter in our family's life. Tuesday I recived a call from Can-Do-Canines, I was very excited to learn that they wanted me to meet a dog by the name of "Truman" who is a black Labrador. I set a time with the women to drive out to New Hope to the facility for Thursday at 1pm. Thrusday came and I got out my GPS and found my way to Can-Do-Canines new facility. Dora, the trainer, met me in the loby and we proceeded to one of the big training rooms. We walked in the room and she told me to take a seat and that she would go get Truman from the Kennal. I was so excited to meet him and I prayed the whole way to the facility. Truman came in the door and walked straight up to me. Dora gave me some dog treats and we sat and talked and Truman sat right by me without even trying to go to his trainer. The first thing I was aware of with Truman was his GREAT eye contact with me. When I talked to him he just staired into my eyes. I kind of laughed because I have never had that kind of experiance with a dog. I said, "Wow, Truman Kadin doesn't even do that!" I practiced walking him and giving some basic commands. Over all it went very well and towards the end Dora said, "So what do you think?" I said, "I really like him and I have not had any negative feelings towards this match so, Yes, I would like to work with him." Dora got the paper work and I filled it all out and we scheduled our first Training session for Tues. July 12th. I am looking forward our next meeting! I will keep you all posted on the progress.
Goodnight!
Monday, June 27, 2011
All Home Safe and Sound!
Dear Readers,
We arrived home around 8:30pm and we are soooo Happy to be back. Thank you all for your support during this past month it really meant a lot to me.
Today did not start off well, Kadin managed to run ahead of Bret and some how he got outside without anyone in the Hotel noticing. Of course I was a complete wreck running in circles trying to figure out where he could have gone. The worst part about this whole ordeal was that I had cut his locator of his ankle last night before last due to the fact that the strap had rubbed his ankle raw. I think it was a combination between the rubbing of the strap and the ongoing exposure to chlorine. Anyway, I had an extra strap that I was going to attach to his other ankle but I had not put it on yet. I was hysterical in the parking lot wondering were to start and beating myself up about not putting the strap on the other ankle regardless of the irritation that was healing from the 2 weeks prior. The Police were sent out and just at the time they arrived Bret found him running down the highway that runs along the Hotel. Kadin was fine but his pants were wet from the running in the grass. The Officer wanted to talk to us about the situation and then she went to talk to the women at the front desk. Due to Kadin's running off we were a bit late for our morning session. Bret went in the tank with the boys and I tried to calm down and make some phone calls. I called Dane county sheriffs office and the Project lifesaver
officers that we had met with when we arrived here in WI. I wanted to explain why he didn't have his bracelet on. Anyway, I managed to calm enough and yes, Kadin got the strap on his "almost healed" ankle as soon as Bret brought him through the door. Of course this would happen on our last day here. Let me tell you, there is never a dull moment with this child of mine! Our second session went well and Bret went in again with the boys and I got to talk to Shannon the Director of the clinic for over an hour. Gloria, Rebekah and I on the "off treatment" time worked on a mini video of our stay here and our experience at Wisconsin Interactive Hyperbarics. The staff loved the video and Shannon asked if she could post it on the WIHC web site! We also took pictures of the all the boys putting there hand print on their "Hand Prints of Hope" wall. I must say it went better than I thought. Kadin smeared the print a bit but we fixed it with a little paper towel and water. Well, I better sign off, the boys have to be up and out the door by 7:30 for summer school.
We will be going to meet Kadin's potential Service Dog this week and I have decided, if you all are interested, to continue blogging about that experience. Let me know if your intersted.
Thank you and Goodnight!! :)
We arrived home around 8:30pm and we are soooo Happy to be back. Thank you all for your support during this past month it really meant a lot to me.
Today did not start off well, Kadin managed to run ahead of Bret and some how he got outside without anyone in the Hotel noticing. Of course I was a complete wreck running in circles trying to figure out where he could have gone. The worst part about this whole ordeal was that I had cut his locator of his ankle last night before last due to the fact that the strap had rubbed his ankle raw. I think it was a combination between the rubbing of the strap and the ongoing exposure to chlorine. Anyway, I had an extra strap that I was going to attach to his other ankle but I had not put it on yet. I was hysterical in the parking lot wondering were to start and beating myself up about not putting the strap on the other ankle regardless of the irritation that was healing from the 2 weeks prior. The Police were sent out and just at the time they arrived Bret found him running down the highway that runs along the Hotel. Kadin was fine but his pants were wet from the running in the grass. The Officer wanted to talk to us about the situation and then she went to talk to the women at the front desk. Due to Kadin's running off we were a bit late for our morning session. Bret went in the tank with the boys and I tried to calm down and make some phone calls. I called Dane county sheriffs office and the Project lifesaver
officers that we had met with when we arrived here in WI. I wanted to explain why he didn't have his bracelet on. Anyway, I managed to calm enough and yes, Kadin got the strap on his "almost healed" ankle as soon as Bret brought him through the door. Of course this would happen on our last day here. Let me tell you, there is never a dull moment with this child of mine! Our second session went well and Bret went in again with the boys and I got to talk to Shannon the Director of the clinic for over an hour. Gloria, Rebekah and I on the "off treatment" time worked on a mini video of our stay here and our experience at Wisconsin Interactive Hyperbarics. The staff loved the video and Shannon asked if she could post it on the WIHC web site! We also took pictures of the all the boys putting there hand print on their "Hand Prints of Hope" wall. I must say it went better than I thought. Kadin smeared the print a bit but we fixed it with a little paper towel and water. Well, I better sign off, the boys have to be up and out the door by 7:30 for summer school.
We will be going to meet Kadin's potential Service Dog this week and I have decided, if you all are interested, to continue blogging about that experience. Let me know if your intersted.
Thank you and Goodnight!! :)
Saturday, June 25, 2011
Success at the "Little Americka" Carnival
Dear Readers,
Well we were blessed with the most beautiful day today and we decided to venture out and try going to the "Little Americka" Carnival. We had the BEST time and Kadin fell in love with the big rollercoaster. Needless to say he wanted to go on it again and again. They also had a 15 min. Train ride that went through the park and out into the country side and there were lots of sheep and goats and Lamas roaming freely around the train and going over the tracks. Tanner's favorite ride was the tilt a whirl because there was a huge statue of Mario Brothers in the center of the ride. When we sat in the car Tanner yelled out, "Mario, do your stuff!" then he said, "this is the best ride ever, Mario is the best!" I felt ill after that ride and Tanner ask me if I wanted to puke. i just laughed and said, "No, but I am not going to go on that ride again." It was a very very successful day! The best part is that we managed to stay the whole day, it was such a cool experiance. When Kadin was done he looked at me and said, "Go to the Van." I knew he was so tired and I was so proud of how both the boys did today. We got back to the van and Kadin just laid on the floor, I got him into his car seat and he crashed on the 30 min. ride back to our hotel. I cannot tell you when the last time Kadin fell asleep without the use of his pills and to fall asleep at 5:00pm hasn't happend since he was like 1 year old. We were nervouse that he wouldn't go down tonight but we gave him his pills a little later and he went down fine. What a day we have had!
Well we were blessed with the most beautiful day today and we decided to venture out and try going to the "Little Americka" Carnival. We had the BEST time and Kadin fell in love with the big rollercoaster. Needless to say he wanted to go on it again and again. They also had a 15 min. Train ride that went through the park and out into the country side and there were lots of sheep and goats and Lamas roaming freely around the train and going over the tracks. Tanner's favorite ride was the tilt a whirl because there was a huge statue of Mario Brothers in the center of the ride. When we sat in the car Tanner yelled out, "Mario, do your stuff!" then he said, "this is the best ride ever, Mario is the best!" I felt ill after that ride and Tanner ask me if I wanted to puke. i just laughed and said, "No, but I am not going to go on that ride again." It was a very very successful day! The best part is that we managed to stay the whole day, it was such a cool experiance. When Kadin was done he looked at me and said, "Go to the Van." I knew he was so tired and I was so proud of how both the boys did today. We got back to the van and Kadin just laid on the floor, I got him into his car seat and he crashed on the 30 min. ride back to our hotel. I cannot tell you when the last time Kadin fell asleep without the use of his pills and to fall asleep at 5:00pm hasn't happend since he was like 1 year old. We were nervouse that he wouldn't go down tonight but we gave him his pills a little later and he went down fine. What a day we have had!
Friday, June 24, 2011
38 down and 2 to go...
Dear Readers,
Today went well even though I think that we all are chomping at the bit to go home. All things considered this month has gone fast, but Monday can't come fast enough! Today, During our lunch hour Mitchell came up to me holding a (PECS) Picture of Markers with the word "Draw" on it he put it in my hand and just looked at me. I was so happy, "I said, "do you want to draw Mitchell?" and he said, "Draw" so Karin got out his markers and color books and he began to scribble. On another occasion today Mitchell came up to me and said, "Trains" and I new he wanted me to put Thomas DVD on so he could watch it. Mitchell is just doing some really great things, I am so glad Gloria and Mike were able to pay for Mitch to have treatment with my boys. I could have never done this trip without Gloria by my side! Kadin, did something today he has NEVER done. I was watching a movie and he came up to me and handed me the phone and said, "Dad....yes a yes!" I said, "Oh my gosh! Do you want to talk to dad?" and he said, "Yes!" I called Bret and said, "Kadin wanted me to call you!" Kadin kept it short and sweet he said, "Hi Dad!" and "Bye Dad!" I thought is was amazing that he was thinking about Bret and then put effort into finding my phone and coming and giving it to me and telling me what he wanted and that was to call his dad! This seems like a lot of steps for him to focus on and follow through. I am so proud of Kadin and I just know more good things are yet to come!
Thank God for God, He truly has blessed us on this trip. And I am so thankful for all of your prayers and kind words of encouragement. WE have an amazing support group and I do not take you guys for granted!
-Much Love :)
Today went well even though I think that we all are chomping at the bit to go home. All things considered this month has gone fast, but Monday can't come fast enough! Today, During our lunch hour Mitchell came up to me holding a (PECS) Picture of Markers with the word "Draw" on it he put it in my hand and just looked at me. I was so happy, "I said, "do you want to draw Mitchell?" and he said, "Draw" so Karin got out his markers and color books and he began to scribble. On another occasion today Mitchell came up to me and said, "Trains" and I new he wanted me to put Thomas DVD on so he could watch it. Mitchell is just doing some really great things, I am so glad Gloria and Mike were able to pay for Mitch to have treatment with my boys. I could have never done this trip without Gloria by my side! Kadin, did something today he has NEVER done. I was watching a movie and he came up to me and handed me the phone and said, "Dad....yes a yes!" I said, "Oh my gosh! Do you want to talk to dad?" and he said, "Yes!" I called Bret and said, "Kadin wanted me to call you!" Kadin kept it short and sweet he said, "Hi Dad!" and "Bye Dad!" I thought is was amazing that he was thinking about Bret and then put effort into finding my phone and coming and giving it to me and telling me what he wanted and that was to call his dad! This seems like a lot of steps for him to focus on and follow through. I am so proud of Kadin and I just know more good things are yet to come!
Thank God for God, He truly has blessed us on this trip. And I am so thankful for all of your prayers and kind words of encouragement. WE have an amazing support group and I do not take you guys for granted!
-Much Love :)
Wednesday, June 22, 2011
5 days left...
Dear Readers,
The treatments went well and Fox 9 news came to our afternoon session. I think everything went well and I hope they where happy with the interviews. Tomorrow is Thursday and I am counting down the days till we get to come home. I can't wait to be in my own bed and get back into the swing of home life. I am so tired I am going to keep this blog short and sweet.
Goodniight!
The treatments went well and Fox 9 news came to our afternoon session. I think everything went well and I hope they where happy with the interviews. Tomorrow is Thursday and I am counting down the days till we get to come home. I can't wait to be in my own bed and get back into the swing of home life. I am so tired I am going to keep this blog short and sweet.
Goodniight!
Tuesday, June 21, 2011
Home stretch...
Dear Readers,
Tomorrow Fox News is going to be at the Center to film Kadin going into the tank and then they are going to interview Shannon the director of the center. I think after the treatment they will be interviewing me, I can't wait until it is over. I just pray that when they do the interview I can keep my answers short and to the point. We have been working on a video of our journey, during our off time from treatment here in WI and just finished it today. Thanks to Rebekah,and her "I - movie" program, we managed to complete a fun video today before she left this afternoon. Since we began the treatment Kadin has been a lot more calm, I have noticed more eye contact, and he has, on several occasions used "Expressive language" spontaneously and appropriately. I think Kadin's proverbial door is opening and I feel that he does most certainly have an opinion and a preference when it comes to what he wants and likes. This past week and a half I have defiantly been dealing with a slightly altered child. (this is a good thing!) It makes me excited to see Kadin in this light and there have been a few time I have felt, dare I say it, relaxed while at the pool or at the center. This means that lately instead of being on 24/7 alert I have felt like it has been more like 20/7 and I can go to the water cooler and fill up my bottle and not have to look over my shoulder to see Kadin booking it out the front door. Kadin has been oddly aware of me and he seems to consciously look for me if he cannot see me. As great as this sounds It feels very odd to me to know that Kadin is watching me and looking for me. His whole life he has never acted like this. He will be 6 next month and I don't know where these last years have gone. I do not pretend to think Hyperbarics is the end all and be all in Therapy's, it affects everyone differently, but I cannot deny that this is one of the BEST choices Bret and I made for our boys. It is not a fluke that the Autism symbol is a puzzle piece, I think that Hyperbarics is a piece in our boys puzzles and I thank God for allowing this to come to pass in our lives. I also think it is proving to be a corner piece in Kadin's puzzle.
Signing off...xoxo
Tomorrow Fox News is going to be at the Center to film Kadin going into the tank and then they are going to interview Shannon the director of the center. I think after the treatment they will be interviewing me, I can't wait until it is over. I just pray that when they do the interview I can keep my answers short and to the point. We have been working on a video of our journey, during our off time from treatment here in WI and just finished it today. Thanks to Rebekah,and her "I - movie" program, we managed to complete a fun video today before she left this afternoon. Since we began the treatment Kadin has been a lot more calm, I have noticed more eye contact, and he has, on several occasions used "Expressive language" spontaneously and appropriately. I think Kadin's proverbial door is opening and I feel that he does most certainly have an opinion and a preference when it comes to what he wants and likes. This past week and a half I have defiantly been dealing with a slightly altered child. (this is a good thing!) It makes me excited to see Kadin in this light and there have been a few time I have felt, dare I say it, relaxed while at the pool or at the center. This means that lately instead of being on 24/7 alert I have felt like it has been more like 20/7 and I can go to the water cooler and fill up my bottle and not have to look over my shoulder to see Kadin booking it out the front door. Kadin has been oddly aware of me and he seems to consciously look for me if he cannot see me. As great as this sounds It feels very odd to me to know that Kadin is watching me and looking for me. His whole life he has never acted like this. He will be 6 next month and I don't know where these last years have gone. I do not pretend to think Hyperbarics is the end all and be all in Therapy's, it affects everyone differently, but I cannot deny that this is one of the BEST choices Bret and I made for our boys. It is not a fluke that the Autism symbol is a puzzle piece, I think that Hyperbarics is a piece in our boys puzzles and I thank God for allowing this to come to pass in our lives. I also think it is proving to be a corner piece in Kadin's puzzle.
Signing off...xoxo
Monday, June 20, 2011
Growing Pains
Dear Readers,
I don't know how many of you have experienced growing pains when you were little but my boys seem to have them real bad. Last night Kadin was up a 3am and instead of screaming he got out of his bed and came over to mine and crawled up in my bed and said, "Owies." and he grabbed my hand and put it on his ankles and wanted me to rub them. I don't know what time he finally fell back asleep but we were up for an hour or so. I awoke with a start and looked at the clock and it was 2 min. past 8am we were suppose to be heading over to the center now and the boys were still sleeping. "Oh, Crap!" I am in for a fight to get these boys up and dressed and breakfast eaten in a min. I got Rebekah up and said, "Rebekah I over slept it is past eight we have to get the boys up ASAP!" Miracle of Miracles the boys woke up with very little complaining and I ran down to the breakfast room to grab some bacon for the boys to eat on the way out the door. Rebekah had Tanner dressed and ready to go and Kadin would only let me get him dressed. Can you believe we were out the door in 10min.! Kadin did not throw a fit there was no screaming and both boys couldn't have been better at our am treatment. In the past sudden change would have sent Kadin into a tail spin or trying to rush him anywhere would not usually go well. I do think God had a little mercy on us this morning and granted a Miracle but I also feel like this might be a positive sign that Kadin and Tanner are responding very positively to the treatment. Time will tell and I will be keeping track.
Rebekah and Crista are leaving tomorrow after our afternoon treatment we have appreciated them immensely and will miss them. Karin is coming tomorrow afternoon to help Gloria for the remainder of our stay. Six more days left! I can see the finish line it is just around the corner!
I don't know how many of you have experienced growing pains when you were little but my boys seem to have them real bad. Last night Kadin was up a 3am and instead of screaming he got out of his bed and came over to mine and crawled up in my bed and said, "Owies." and he grabbed my hand and put it on his ankles and wanted me to rub them. I don't know what time he finally fell back asleep but we were up for an hour or so. I awoke with a start and looked at the clock and it was 2 min. past 8am we were suppose to be heading over to the center now and the boys were still sleeping. "Oh, Crap!" I am in for a fight to get these boys up and dressed and breakfast eaten in a min. I got Rebekah up and said, "Rebekah I over slept it is past eight we have to get the boys up ASAP!" Miracle of Miracles the boys woke up with very little complaining and I ran down to the breakfast room to grab some bacon for the boys to eat on the way out the door. Rebekah had Tanner dressed and ready to go and Kadin would only let me get him dressed. Can you believe we were out the door in 10min.! Kadin did not throw a fit there was no screaming and both boys couldn't have been better at our am treatment. In the past sudden change would have sent Kadin into a tail spin or trying to rush him anywhere would not usually go well. I do think God had a little mercy on us this morning and granted a Miracle but I also feel like this might be a positive sign that Kadin and Tanner are responding very positively to the treatment. Time will tell and I will be keeping track.
Rebekah and Crista are leaving tomorrow after our afternoon treatment we have appreciated them immensely and will miss them. Karin is coming tomorrow afternoon to help Gloria for the remainder of our stay. Six more days left! I can see the finish line it is just around the corner!
Sunday, June 19, 2011
Happy Father's Day!
Dear Readers,
Today was very laid back we woke up and went down to breakfast at 8:30am then Bret took the kids swimming. I was still not feeling to good and I stayed in the room and straightened up a bit. Tanner pulled his tooth out yesterday and do to the fact that I was not feeling well last night I forgot to put the gold dollar coin in the bag with the tooth. Of course Ashtyn was yelling this morning, "Tanner look under your pillow the tooth fairy was suppose to come!' At that point I looked at Bret and shot out of bed while yelling, "Crap" I quickly grabbed my purse in the dark and pulled out the coin and slipped it in the bag with the tooth. Tanner and Ashtyn didn't see me slip it under the pillow and they seemed very excited to find it. Whew!! I dodged that one..just barely! The Kids gave Bret a picture frame with pictures of the kids and I. Bret, Mike and Ashtyn left around 4pm for home. We relaxed in the hotel room for a bit and Tanner had asked if he could build with the Trio blocks and I said yes and got them out for him. Kadin, saw that Tanner had the Trio's out and started to take some from him, next thing I know they were fighting. Most cases this would be something I would break up immediately but I have never ever seen Kadin fight his brother back. Rebekah broke it up and Kadin promptly came to me and said, "Want to build!" I then said, "Tanner can you please share some with Kadin?" Tanner then gave him some blocks, and I sat with my mouth wide open, the whole thing was incredibly shocking. Kadin did not scream at all through this whole exchange. I think I can get use to this.
Today was very laid back we woke up and went down to breakfast at 8:30am then Bret took the kids swimming. I was still not feeling to good and I stayed in the room and straightened up a bit. Tanner pulled his tooth out yesterday and do to the fact that I was not feeling well last night I forgot to put the gold dollar coin in the bag with the tooth. Of course Ashtyn was yelling this morning, "Tanner look under your pillow the tooth fairy was suppose to come!' At that point I looked at Bret and shot out of bed while yelling, "Crap" I quickly grabbed my purse in the dark and pulled out the coin and slipped it in the bag with the tooth. Tanner and Ashtyn didn't see me slip it under the pillow and they seemed very excited to find it. Whew!! I dodged that one..just barely! The Kids gave Bret a picture frame with pictures of the kids and I. Bret, Mike and Ashtyn left around 4pm for home. We relaxed in the hotel room for a bit and Tanner had asked if he could build with the Trio blocks and I said yes and got them out for him. Kadin, saw that Tanner had the Trio's out and started to take some from him, next thing I know they were fighting. Most cases this would be something I would break up immediately but I have never ever seen Kadin fight his brother back. Rebekah broke it up and Kadin promptly came to me and said, "Want to build!" I then said, "Tanner can you please share some with Kadin?" Tanner then gave him some blocks, and I sat with my mouth wide open, the whole thing was incredibly shocking. Kadin did not scream at all through this whole exchange. I think I can get use to this.
(Saturdays Post) The Litmus Test...
Dear Readers,
So sorry this post is late, I think everything is finally catching up with me and I was not feeling well and went to bed early. Anyway, out of all the posts I have written thus far this is the one I am most excited about! So, Treatments went very well, and Bret went in the Tank with Tanner & Kadin both times. If your wondering why we treated on this Saturday it was to make up for a scheduling mistake by staff and in order to get our 40 "dives" in we needed to come in on a Saturday. I was glad that they chose this Saturday because I really wanted Bret to experience what we were doing with the boys etc. I also really enjoyed the fact that I had the opportunity to talk to the technician who has a son with Autism and as gone through the treatments. Erin, the technician, also shared other stories with me about many other families that have had wonderful success with Hyperbarics. After both treatments were done we all went to the park and then swimming at the park when Kadin was done he ran out towards the van and I ran after him, I said, "Kadin, you don't leave the park without mom!" He looked very hot and tired and I said, "Do you want mom to hold you?" and he help up his arms and said, "Hold you." I picked him up and he put his head on my shoulder and we got into the van. I was excited that there was no screaming involved and he simply asked for me to hold him. Later in the afternoon around 5:45pm we had planned on going bowling. Now this was our, or rather my, litmus test. Keep in mind I would NEVER suggest bringing the whole family bowling, Kadin in particular, but I wanted to see how the Hyperbarics was working for kadin in public situations. Before we left for the ally, which is literally across the parking lot, I said to Rebekah, "This may be a quick trip, could you be ready to take Kadin back to the hotel if he starts freaking out?" Of course Rebekah was prepared to take him and we both didn't expect him to last 15min. I was shocked at how well he did and how calm he was. We all kept commenting on how well Kadin and Mitchell was doing. He did not last the whole game. But Kadin did bowl 6 frames and Mitchell bowled a whole game! We were so proud of all the kids and after Kadin was finished he walked up to me and and said, "Burrr, its cold." as he wrapped his arms around his body. then I said, "Do you want to go back to the hotel?" and he said as he looked at me, "Walka my home." I was so shocked and said, "What honey?" Then he repeated, 'Walka my home." I turned to Bret and said, "Kadin is done and he wants to go back to the hotel. I could have cried right there. In the past this bowling trip would have never taken place due to Kadin's inability to coupe with the noise of the balls hitting the pins, the loud music, the people and all the other things go on at a bowling ally. The fact that he didn't have one screaming outburst at the ally is a miracle and when he was done he verbally let me know he wanted to go back to the hotel. This is a GIANT accomplishment for Kadin and for our family!! I will remember this day for the rest of my life! I am going to post a video of Kadin bowling on my facebook page and a few other photos from treatment today. Continue to pray for us as we finish our treatment here in Wisconsin. Thank you all!!
So sorry this post is late, I think everything is finally catching up with me and I was not feeling well and went to bed early. Anyway, out of all the posts I have written thus far this is the one I am most excited about! So, Treatments went very well, and Bret went in the Tank with Tanner & Kadin both times. If your wondering why we treated on this Saturday it was to make up for a scheduling mistake by staff and in order to get our 40 "dives" in we needed to come in on a Saturday. I was glad that they chose this Saturday because I really wanted Bret to experience what we were doing with the boys etc. I also really enjoyed the fact that I had the opportunity to talk to the technician who has a son with Autism and as gone through the treatments. Erin, the technician, also shared other stories with me about many other families that have had wonderful success with Hyperbarics. After both treatments were done we all went to the park and then swimming at the park when Kadin was done he ran out towards the van and I ran after him, I said, "Kadin, you don't leave the park without mom!" He looked very hot and tired and I said, "Do you want mom to hold you?" and he help up his arms and said, "Hold you." I picked him up and he put his head on my shoulder and we got into the van. I was excited that there was no screaming involved and he simply asked for me to hold him. Later in the afternoon around 5:45pm we had planned on going bowling. Now this was our, or rather my, litmus test. Keep in mind I would NEVER suggest bringing the whole family bowling, Kadin in particular, but I wanted to see how the Hyperbarics was working for kadin in public situations. Before we left for the ally, which is literally across the parking lot, I said to Rebekah, "This may be a quick trip, could you be ready to take Kadin back to the hotel if he starts freaking out?" Of course Rebekah was prepared to take him and we both didn't expect him to last 15min. I was shocked at how well he did and how calm he was. We all kept commenting on how well Kadin and Mitchell was doing. He did not last the whole game. But Kadin did bowl 6 frames and Mitchell bowled a whole game! We were so proud of all the kids and after Kadin was finished he walked up to me and and said, "Burrr, its cold." as he wrapped his arms around his body. then I said, "Do you want to go back to the hotel?" and he said as he looked at me, "Walka my home." I was so shocked and said, "What honey?" Then he repeated, 'Walka my home." I turned to Bret and said, "Kadin is done and he wants to go back to the hotel. I could have cried right there. In the past this bowling trip would have never taken place due to Kadin's inability to coupe with the noise of the balls hitting the pins, the loud music, the people and all the other things go on at a bowling ally. The fact that he didn't have one screaming outburst at the ally is a miracle and when he was done he verbally let me know he wanted to go back to the hotel. This is a GIANT accomplishment for Kadin and for our family!! I will remember this day for the rest of my life! I am going to post a video of Kadin bowling on my facebook page and a few other photos from treatment today. Continue to pray for us as we finish our treatment here in Wisconsin. Thank you all!!
Friday, June 17, 2011
The Guys are in Town
Dear Readers,
Bret and Mike are here! We just got back from dinner (just adults) and we had a lot of fun. The kids seemed very excited to see their dads. Kadin Kept jumping on Bret and saying, "Spinnin, yes a yes!" It was so cute and Tanner said, "Hey dad, Remember the vikings show (talkinga about the football team) we need to watch a episond, ok dad?" Then in true Tanner style he went right into, "Dad maybe we could get to world 10 in Super Mario Brothers."
As for Treatment today, it was an experiance. Our am treatment went very well our pm treatment Tanner had a #2 accidant 30min. into the treatment so we had to depressurize the tank and get out. Kadin thought we were done and he was VERY upset when we went back in the Tank after Tanner got cleaned up. Let me tell you screamming in a metal tank will hurt anyones ears and it took me about 15mins to calm him down. I hope that never happens again it was not fun.
Fox news people are coming next wednesday to do the interviews and get some film. Overall things have been going really good and our last day will be here before we know it.
signing off!
Good night
Bret and Mike are here! We just got back from dinner (just adults) and we had a lot of fun. The kids seemed very excited to see their dads. Kadin Kept jumping on Bret and saying, "Spinnin, yes a yes!" It was so cute and Tanner said, "Hey dad, Remember the vikings show (talkinga about the football team) we need to watch a episond, ok dad?" Then in true Tanner style he went right into, "Dad maybe we could get to world 10 in Super Mario Brothers."
As for Treatment today, it was an experiance. Our am treatment went very well our pm treatment Tanner had a #2 accidant 30min. into the treatment so we had to depressurize the tank and get out. Kadin thought we were done and he was VERY upset when we went back in the Tank after Tanner got cleaned up. Let me tell you screamming in a metal tank will hurt anyones ears and it took me about 15mins to calm him down. I hope that never happens again it was not fun.
Fox news people are coming next wednesday to do the interviews and get some film. Overall things have been going really good and our last day will be here before we know it.
signing off!
Good night
Thursday, June 16, 2011
Peer Pressure on the Play Ground
Dear Readers,
Today's treatment were routine and there were no surprises. We went to an new park today that was pretty cool. i think the name of the park was "Castle Park" The kids loved it. The only problem we had was that the sun decided to show and it got hot real fast and the boys were still in there jeans. Kadin solved that one and promptly climbed to the top the the wood castle maze and proceeded to undress. Of course other kids at the park all started yelling, "look that boy it in his underwear! to which Tanner promptly corrected them and said, "Um look closer guys it's a diaper." (Thanks Tanner) Now we have the kids at the park running around laughing and yelling, Diaper boy, Diaper boy." Then Tanner yelled out, " ew he stinks to which I replied, "Tanner don't say that your brother that's mean!" Rebekah then came up to me and said, "Actually Marjorie he does stink." So I took Kadin to the 150 degree van and changed his poopy pull up. Then back to the park we went, Kadin didn't give a hoot about what the kids were chanting and frankly I don't try to explain it to kids Kadin's age they don't get it anyway. Kadin was not phased and all he wanted was for me to chase him, he kept saying, "Mom...Run!" and he would take off giggling and he would keep turning around to see that I was chasing after him. Well, we lasted longer than expected in the heat and we piled up in the conversion van and asked a local where the nearest McDonalds was so we could get ice cream. When we were on our way back to the hotel my phone rang and it was Bret telling us that Patrick (My cousin) was going to stop by and visit for awhile before he headed back to Saint Paul. It was so nice to see him and Gloria made her special drinks and we talked with Pat for about an hour and a half. Cecelia just put on a show she just loved Pat and he held her for awhile as we talked. Patrick got to witness Kadin saying "I love you" to me and that was kind of special. We sent Patrick on his way around 8pm and the kids fell asleep shortly after. Rebekah told me that when Kadin was falling asleep on the bed she went over to give him a kiss and she said, "Good night Kadin I love you." and Kadin said, "good night, i love you!" I think it almost made Rebekah cry. Fox News people are coming here next week Tuesday I believe to interview us and some people at the center. This same reporter is going to be doing a story on Kadin and his service dog. I truly hope that how ever these stories come across that it will be of help to another family that maybe has never heard of these options. We have been so blessed by the changes we have seen thus far and I would say to anyone that is sceptical that I was to but we had to do it. What if this is the key to unlocking Kadin's world? As a mother I wanted to do this therapy for over two years. It just sat in the back of my head and would never go away. Somehow, God made this possible for us and I am sitting here in WI blogging to you all about it. So far this treatment has done more for Kadin in the last 16 days than any other treatment we have ever tried. I have said it before and I will say it again, it has already been worth every penny. Money comes into our lives and quickly goes out but our children are there until the lord takes them from us and until that day I will not stop looking and searching for ways to help our boys especially Kadin. xo
Today's treatment were routine and there were no surprises. We went to an new park today that was pretty cool. i think the name of the park was "Castle Park" The kids loved it. The only problem we had was that the sun decided to show and it got hot real fast and the boys were still in there jeans. Kadin solved that one and promptly climbed to the top the the wood castle maze and proceeded to undress. Of course other kids at the park all started yelling, "look that boy it in his underwear! to which Tanner promptly corrected them and said, "Um look closer guys it's a diaper." (Thanks Tanner) Now we have the kids at the park running around laughing and yelling, Diaper boy, Diaper boy." Then Tanner yelled out, " ew he stinks to which I replied, "Tanner don't say that your brother that's mean!" Rebekah then came up to me and said, "Actually Marjorie he does stink." So I took Kadin to the 150 degree van and changed his poopy pull up. Then back to the park we went, Kadin didn't give a hoot about what the kids were chanting and frankly I don't try to explain it to kids Kadin's age they don't get it anyway. Kadin was not phased and all he wanted was for me to chase him, he kept saying, "Mom...Run!" and he would take off giggling and he would keep turning around to see that I was chasing after him. Well, we lasted longer than expected in the heat and we piled up in the conversion van and asked a local where the nearest McDonalds was so we could get ice cream. When we were on our way back to the hotel my phone rang and it was Bret telling us that Patrick (My cousin) was going to stop by and visit for awhile before he headed back to Saint Paul. It was so nice to see him and Gloria made her special drinks and we talked with Pat for about an hour and a half. Cecelia just put on a show she just loved Pat and he held her for awhile as we talked. Patrick got to witness Kadin saying "I love you" to me and that was kind of special. We sent Patrick on his way around 8pm and the kids fell asleep shortly after. Rebekah told me that when Kadin was falling asleep on the bed she went over to give him a kiss and she said, "Good night Kadin I love you." and Kadin said, "good night, i love you!" I think it almost made Rebekah cry. Fox News people are coming here next week Tuesday I believe to interview us and some people at the center. This same reporter is going to be doing a story on Kadin and his service dog. I truly hope that how ever these stories come across that it will be of help to another family that maybe has never heard of these options. We have been so blessed by the changes we have seen thus far and I would say to anyone that is sceptical that I was to but we had to do it. What if this is the key to unlocking Kadin's world? As a mother I wanted to do this therapy for over two years. It just sat in the back of my head and would never go away. Somehow, God made this possible for us and I am sitting here in WI blogging to you all about it. So far this treatment has done more for Kadin in the last 16 days than any other treatment we have ever tried. I have said it before and I will say it again, it has already been worth every penny. Money comes into our lives and quickly goes out but our children are there until the lord takes them from us and until that day I will not stop looking and searching for ways to help our boys especially Kadin. xo
Wednesday, June 15, 2011
Mystery.....solved!
Dear Readers,
We arrived back at the hotel, after treatment, this morning to find a plastic cup in the bathroom with a small amount of yellow liquid in it. Being a mom I stuck my nose in the cup to smell it and sure enough it was pee! I went out into the room and said, who peed in this cup, to which Tanner replied, "I did mom." Then it dawned on me... Oh Crap! I forgot to tell Tanner we were done with his 6 hour urine collection yesterday! I had drilled it into him yesterday that he was NOT to pee in the potty because I needed to collect his urine for 6 hours for a "Urine Toxic Metal test" We finished the test yesterday and I Fed-Exed the sample out to the Lab, but I neglected to tell Tanner we were done. Anyway, Tanner had gone to the bathroom this morning and faithfully used the cup and we left for Treatment. Some time BEFORE we left for the center Kadin must have gone into the bathroom because, as you recall, I said there was a small amount left in the cup. OMG!!!!! "Where is the rest of the PEE!" I looked around the bathroom (which reeked of urine smell) and saw that Kadin had dumped it all over the floor and the, once white, hotel towels were now Yellow. I have to say I did breath a sigh of relief because just think if he would have dumped it on the hotel carpet. Well, the mystery was solved and yes, I informed Tanner that he can resume using the toilet. I tell you, right here in River City, there is NEVER a dull moment. The kids sure keep me on my toes. (I think I would have made a great ballerina!" sorry...bad joke.
Oh and By the way, Kadin came up to me and said, "Ask....help.....help?" he was tring to take of his sweater (yes it was cold enough for a sweater.) Also, he laid beside Ashtyn and Tanner for quite some time in the hotel bed and watched a movie with them and he seemed to be enjoying every min. of it. It makes my heart swell to see the three of them interacting together, for a few brief moments I see "unique" Normality.
What a journey we are on and I wouldn't trade it for the world! I am seeing my baby do things I have never seen before. Believe it or not he seems to be going through "Mommy's Boy" stage he wants to be with me all the time and HE WANTS TO HOLD MY HAND and lace his fingers through mine. Right, now I would love to hear the cast of GLEE sing the song "I want to hold your hand." by the Beetles
We arrived back at the hotel, after treatment, this morning to find a plastic cup in the bathroom with a small amount of yellow liquid in it. Being a mom I stuck my nose in the cup to smell it and sure enough it was pee! I went out into the room and said, who peed in this cup, to which Tanner replied, "I did mom." Then it dawned on me... Oh Crap! I forgot to tell Tanner we were done with his 6 hour urine collection yesterday! I had drilled it into him yesterday that he was NOT to pee in the potty because I needed to collect his urine for 6 hours for a "Urine Toxic Metal test" We finished the test yesterday and I Fed-Exed the sample out to the Lab, but I neglected to tell Tanner we were done. Anyway, Tanner had gone to the bathroom this morning and faithfully used the cup and we left for Treatment. Some time BEFORE we left for the center Kadin must have gone into the bathroom because, as you recall, I said there was a small amount left in the cup. OMG!!!!! "Where is the rest of the PEE!" I looked around the bathroom (which reeked of urine smell) and saw that Kadin had dumped it all over the floor and the, once white, hotel towels were now Yellow. I have to say I did breath a sigh of relief because just think if he would have dumped it on the hotel carpet. Well, the mystery was solved and yes, I informed Tanner that he can resume using the toilet. I tell you, right here in River City, there is NEVER a dull moment. The kids sure keep me on my toes. (I think I would have made a great ballerina!" sorry...bad joke.
Oh and By the way, Kadin came up to me and said, "Ask....help.....help?" he was tring to take of his sweater (yes it was cold enough for a sweater.) Also, he laid beside Ashtyn and Tanner for quite some time in the hotel bed and watched a movie with them and he seemed to be enjoying every min. of it. It makes my heart swell to see the three of them interacting together, for a few brief moments I see "unique" Normality.
What a journey we are on and I wouldn't trade it for the world! I am seeing my baby do things I have never seen before. Believe it or not he seems to be going through "Mommy's Boy" stage he wants to be with me all the time and HE WANTS TO HOLD MY HAND and lace his fingers through mine. Right, now I would love to hear the cast of GLEE sing the song "I want to hold your hand." by the Beetles
Tuesday, June 14, 2011
Half way done!
Dear Readers,
Today we finished our 20th treatment at the Hyperbaric Center! Today went well and Gloria and I had to do another Aldi run for food. Mitchell, has been just doing fabulous and he started using his communicating pics to day to make requests. Gloria is very excited about this because he has been doing this independently. Kadin continues to surprise us all with his spontaneous responses and unprompted requests. Gloria and I decided to bye some pizza's at aldi to make for dinner, we also made special Gluten Free Pizza's for the boys. We had all eaten our dinner accept Mitchell and Kadin, the bottomless pit, walked up to Mitchell's plate and picked it up and proceeded out of the room. Gloria spotted him and yelled, "Hey Kadin, that is Mitchell's food." Kadin turned around and said, "Mitchell's.....food." and promptly placed the plate on the bed and walked away saying, "Mitchell's food." The Kadin we know would have took off with the pizza in hand and promptly shoved it down his throat before we would get to him. To say we were all shocked is an understatement. I have also seen a change in Kadin in that he seems to becoming more attached to me which is rather unusual, we will see if this continues on when we get home. Kadin, now has said, "I love you mom!" while looking me in the eye's and I truly feel that he is looking at me and not past me or with a blank stare. I have gotten so much joy watching him the past few days and he really seems to be laughing more and wanting me to play with him. I will say, "Kadin, what do you want?" and he will say, "Want more tickle!" this will often be followed with a joyous laughter. I am taking it all in slowly and cautiously but I must say, "My cup runneth over."
Sweet dreams kids, tomorrow is another day....
Good night!
Today we finished our 20th treatment at the Hyperbaric Center! Today went well and Gloria and I had to do another Aldi run for food. Mitchell, has been just doing fabulous and he started using his communicating pics to day to make requests. Gloria is very excited about this because he has been doing this independently. Kadin continues to surprise us all with his spontaneous responses and unprompted requests. Gloria and I decided to bye some pizza's at aldi to make for dinner, we also made special Gluten Free Pizza's for the boys. We had all eaten our dinner accept Mitchell and Kadin, the bottomless pit, walked up to Mitchell's plate and picked it up and proceeded out of the room. Gloria spotted him and yelled, "Hey Kadin, that is Mitchell's food." Kadin turned around and said, "Mitchell's.....food." and promptly placed the plate on the bed and walked away saying, "Mitchell's food." The Kadin we know would have took off with the pizza in hand and promptly shoved it down his throat before we would get to him. To say we were all shocked is an understatement. I have also seen a change in Kadin in that he seems to becoming more attached to me which is rather unusual, we will see if this continues on when we get home. Kadin, now has said, "I love you mom!" while looking me in the eye's and I truly feel that he is looking at me and not past me or with a blank stare. I have gotten so much joy watching him the past few days and he really seems to be laughing more and wanting me to play with him. I will say, "Kadin, what do you want?" and he will say, "Want more tickle!" this will often be followed with a joyous laughter. I am taking it all in slowly and cautiously but I must say, "My cup runneth over."
Sweet dreams kids, tomorrow is another day....
Good night!
Monday, June 13, 2011
Are you an Astronaut?
Dear Readers,
Today marked our 17th and 18th treatments, wow we are almost half way done! After the second treatment to day Rebekah and Crista took the kids to the park while Gloria did laundry and went back to the center to cook dinner for everyone. Mean while I cleaned my hotel room, watched CeCe and washed a huge pan load o dishes in our bath tub. When the gang got back from the park Rebekah said that there were a lot of people at the park and it was "Crazy" there. She also mentioned that there was a Marine in Uniform with his daughter at the park and she said Tanner ran up to him, very excited, and said, "Are you an Astronaut?" the Marine laughed and replied, "No I am not." Tanner, who I am sure was disappointed, said, "Oh" and turned around and ran back to play in the park. I think Tanner has "Space" on the brain, after all I do tell him every week day that we go into a space ship for treatment.
While we were getting ready for bed Kadin was Jumping from bed to bed and I was trying to calm him down I pinned him on the bed and then he started to chant, "Waiting for Becca waiting for Becca Hi ho the Cheerio were waiting for Becca." I started laughing and said, "Rebekah do you her this?" I looked at Kadin, who had a huge smile on his face, and said, "Rebekah is not coming to save you!"
Crista said that Kadin came up to her with a water bottle today and looked her in the face and said, "Ask help...Help?" and Crista said it brought a smile to her face. Kadin has started doing this where he will mimic what we always say to him than immediately follow it with his answer or question.
The Wisconsin tooth fairy should be coming to our hotel in the next day or two. Tanners front tooth is literally hanging and he refuses to let anyone touch it, I just hope it does not fall out in his sleep. It just so happens that I have a Gold $1 coin in my wallet and I have no idea how it got there. My Grandma Leona always gives these coins to the kids in their birthday cards.
I can't wait to put it under Tanner's pillow.
signing off...
Goodnight!
Today marked our 17th and 18th treatments, wow we are almost half way done! After the second treatment to day Rebekah and Crista took the kids to the park while Gloria did laundry and went back to the center to cook dinner for everyone. Mean while I cleaned my hotel room, watched CeCe and washed a huge pan load o dishes in our bath tub. When the gang got back from the park Rebekah said that there were a lot of people at the park and it was "Crazy" there. She also mentioned that there was a Marine in Uniform with his daughter at the park and she said Tanner ran up to him, very excited, and said, "Are you an Astronaut?" the Marine laughed and replied, "No I am not." Tanner, who I am sure was disappointed, said, "Oh" and turned around and ran back to play in the park. I think Tanner has "Space" on the brain, after all I do tell him every week day that we go into a space ship for treatment.
While we were getting ready for bed Kadin was Jumping from bed to bed and I was trying to calm him down I pinned him on the bed and then he started to chant, "Waiting for Becca waiting for Becca Hi ho the Cheerio were waiting for Becca." I started laughing and said, "Rebekah do you her this?" I looked at Kadin, who had a huge smile on his face, and said, "Rebekah is not coming to save you!"
Crista said that Kadin came up to her with a water bottle today and looked her in the face and said, "Ask help...Help?" and Crista said it brought a smile to her face. Kadin has started doing this where he will mimic what we always say to him than immediately follow it with his answer or question.
The Wisconsin tooth fairy should be coming to our hotel in the next day or two. Tanners front tooth is literally hanging and he refuses to let anyone touch it, I just hope it does not fall out in his sleep. It just so happens that I have a Gold $1 coin in my wallet and I have no idea how it got there. My Grandma Leona always gives these coins to the kids in their birthday cards.
I can't wait to put it under Tanner's pillow.
signing off...
Goodnight!
Sunday, June 12, 2011
Little by little...
Dear Readers,
Some exciting things to report today! Today at the park Mitchell came up to me while I was sitting on the park bench, he grabbed my hand and and looked me straight in the face and smiled. He did not say anything as he pulled me up the jungle gym to the top of the Giant slide. He turned and looked in my face again and said, "Slide with me?" I was so excited and I yelled down to Crista and Rebekah what had just happened. I was so happy, I called Gloria and said, "Mitchell wanted me to slide with him." And I proceeded to tell her what had just happened. When we got back to the Hotel room Mitchell had gotten out his Dinosaurs and played with them after he was done playing Gloria found him picking them up on his own while singing the clean up song to himself! THIS IS A BIG DEAL!!
Kadin, has been unusually attentive and CALM. I thought maybe he was getting sick but he seems just fine and happy today just calm and focused. This is day two of this strange demeanor and I am loving it!! I was told this Treatment could calm the kids but I guess I never really thought it would happen with Kadin. (Still crossing my fingers) I hesitate sharing this with you all because I am afraid I will jinks myself and he will be back to his hyper crazy active self tomorrow. I am not holding my breath but I will say I am very "Optimistic" about this! Today has been a very long day and we are all looking forward to Monday so we can continue treatment.
Thank you all for your ongoing support!!
Much love!
Some exciting things to report today! Today at the park Mitchell came up to me while I was sitting on the park bench, he grabbed my hand and and looked me straight in the face and smiled. He did not say anything as he pulled me up the jungle gym to the top of the Giant slide. He turned and looked in my face again and said, "Slide with me?" I was so excited and I yelled down to Crista and Rebekah what had just happened. I was so happy, I called Gloria and said, "Mitchell wanted me to slide with him." And I proceeded to tell her what had just happened. When we got back to the Hotel room Mitchell had gotten out his Dinosaurs and played with them after he was done playing Gloria found him picking them up on his own while singing the clean up song to himself! THIS IS A BIG DEAL!!
Kadin, has been unusually attentive and CALM. I thought maybe he was getting sick but he seems just fine and happy today just calm and focused. This is day two of this strange demeanor and I am loving it!! I was told this Treatment could calm the kids but I guess I never really thought it would happen with Kadin. (Still crossing my fingers) I hesitate sharing this with you all because I am afraid I will jinks myself and he will be back to his hyper crazy active self tomorrow. I am not holding my breath but I will say I am very "Optimistic" about this! Today has been a very long day and we are all looking forward to Monday so we can continue treatment.
Thank you all for your ongoing support!!
Much love!
Saturday, June 11, 2011
Lazy days of summer......
Dear Readers,
On the Calender it is summer but if you step outside it feels like Fall. We stayed in the hotel for the morning and then Gloria and I took Ashtyn and Tanner to see "Kung Fu Panda 2" There happens to be a AMC less than a mile away from the hotel. We really enjoyed the movie and got back to the hotel around 3:30pm. Rebekah took Kadin swimming and to the park down the road and then swimming again. Kadin has been surprisingly calm today, when we were sitting in the hotel room he looked at books for a while peacfully and then wanted to look at the picture of His Pine tree at the farm. (I have a picture of it on my phone.)He laid by me for over 20min. I am hoping that this is a good side affect of treatment and NOT that he is getting sick. We have been here for 11 days and I got to work out for the first time. Looking forward to bed tonght and hope tomorrow goes fast. The week days fly by because we have a scheduled routine, it seems to be hard to entertain all the kids ages 15months to 8years old. Hopefuly Gloria, Rebekah, Crista and I will get to play cards or something tonight.
Signing off,
good night!
On the Calender it is summer but if you step outside it feels like Fall. We stayed in the hotel for the morning and then Gloria and I took Ashtyn and Tanner to see "Kung Fu Panda 2" There happens to be a AMC less than a mile away from the hotel. We really enjoyed the movie and got back to the hotel around 3:30pm. Rebekah took Kadin swimming and to the park down the road and then swimming again. Kadin has been surprisingly calm today, when we were sitting in the hotel room he looked at books for a while peacfully and then wanted to look at the picture of His Pine tree at the farm. (I have a picture of it on my phone.)He laid by me for over 20min. I am hoping that this is a good side affect of treatment and NOT that he is getting sick. We have been here for 11 days and I got to work out for the first time. Looking forward to bed tonght and hope tomorrow goes fast. The week days fly by because we have a scheduled routine, it seems to be hard to entertain all the kids ages 15months to 8years old. Hopefuly Gloria, Rebekah, Crista and I will get to play cards or something tonight.
Signing off,
good night!
Friday, June 10, 2011
Does anyone know where Tanner is?
Dear Readers,
So shortly after we arrived home from our morning treatment I walked in the Hotel room with Kadin, Gloria followed behind with Mitchell and Tanner was no where to be seen. Gloria, "Where is Tanner, he was with you!" I said. Gloria responded, "I thought he got out of the van with you!" I said, "No, Kadin got out my door and Tanner should have gotten out your door." In a panic I ran through the Hotel looking for him, I had grabbed my van keys to also check the Van. I got out to the van and unlocked the door to find Tanner calmly sitting in his seat. I said, "Tanner, why didn't you get out of the van with Gloria?" He said, "There you are. I was waiting for you, you left me." I got him out of the van and walked back to the room to explain what happened to the others. Gloria thought he was hiding in the van but Tanner claims he was not hiding. Anyway, the good news is he was found and he was fine. I keep thinking any other child would have been screaming and maybe even banging on the windows due to the fact that the door were locked. I felt like the worst mom ever even though Tanner seemed unphased.
Our Afternoon treatment went good too and Rebekah and Crista got to see the center and the Chambers for the first time. After the second session we took the kids to a park and they all were so excited to see a huge slide and big jungle gym. There was a long stair case up to the 3 story slide and it appeared to me that Kadin was kissing every step that lead up to the top of the slide. I even yelled to him and said, "Kadin are you pretending your in Israel?" Mitchell and Kadin kept going down the slide and running around and climbing the sacred stairs. Kadin also went nuts on the monkey bars swinging and hanging etc. I told Crista that Kadin has not gotten to do that since we arrived here. When we all were back at the hotel Kadin said to Rebekah, "Becca, I want to sleep!" She was so excited she came into Gloria's room where I was to tell me. Of course we all were so happy and Rebekah said that this was the first sentence she has ever heard Kadin say. Rebekah has been with us for close to a year now and we just adore her and we are so glad she was able to come for a couple weeks to help out. It is now 9:32 and Gloria just walked in with vodka Gimlet's for us so I'd better sign off for tonight.
GOOOOOOD Night!
So shortly after we arrived home from our morning treatment I walked in the Hotel room with Kadin, Gloria followed behind with Mitchell and Tanner was no where to be seen. Gloria, "Where is Tanner, he was with you!" I said. Gloria responded, "I thought he got out of the van with you!" I said, "No, Kadin got out my door and Tanner should have gotten out your door." In a panic I ran through the Hotel looking for him, I had grabbed my van keys to also check the Van. I got out to the van and unlocked the door to find Tanner calmly sitting in his seat. I said, "Tanner, why didn't you get out of the van with Gloria?" He said, "There you are. I was waiting for you, you left me." I got him out of the van and walked back to the room to explain what happened to the others. Gloria thought he was hiding in the van but Tanner claims he was not hiding. Anyway, the good news is he was found and he was fine. I keep thinking any other child would have been screaming and maybe even banging on the windows due to the fact that the door were locked. I felt like the worst mom ever even though Tanner seemed unphased.
Our Afternoon treatment went good too and Rebekah and Crista got to see the center and the Chambers for the first time. After the second session we took the kids to a park and they all were so excited to see a huge slide and big jungle gym. There was a long stair case up to the 3 story slide and it appeared to me that Kadin was kissing every step that lead up to the top of the slide. I even yelled to him and said, "Kadin are you pretending your in Israel?" Mitchell and Kadin kept going down the slide and running around and climbing the sacred stairs. Kadin also went nuts on the monkey bars swinging and hanging etc. I told Crista that Kadin has not gotten to do that since we arrived here. When we all were back at the hotel Kadin said to Rebekah, "Becca, I want to sleep!" She was so excited she came into Gloria's room where I was to tell me. Of course we all were so happy and Rebekah said that this was the first sentence she has ever heard Kadin say. Rebekah has been with us for close to a year now and we just adore her and we are so glad she was able to come for a couple weeks to help out. It is now 9:32 and Gloria just walked in with vodka Gimlet's for us so I'd better sign off for tonight.
GOOOOOOD Night!
Thursday, June 09, 2011
Thank God for the Rienforcements!
Dear Readers,
The clouds have parted and today is a new day! Both Treatments went very well and Krista (Mitchell's new PCA) and Rebekah (Kadin and Tanner's PCA) Arrived around 2:30pm. Karin left around 3:15pm and everyone is happy and calm!! The Kids went swimming with the PCA's and Gloria and I FINALLY had a real break! After the kids ate dinner we left them in the care of Krista and Rebekah and went Bowling! I am going to post the pics on my facebook page later. We ordered a 16" pizza thinking we would have lots of left overs for tomorrow, but guess what? We ate every last bite and the two Long Island Tea's (each) were Heavenly! I think we bowled for 2 hours and we got home around 9pm. Best part is the kids were sleeping when we got home! Gloria and I had so much fun, it is just what we needed after yesterday.
Kadin, seems a lot calmer today and more attentive to me. His favorite book these days is "A Color Of His Own" by Leo Lionii and I think we read it about 20 + times today! That is also All he wanted to do while in treatment for the morning and afternoon session. Anyway, I am so happy to tell you today was GREAT and I treasure all of you that are supporting us in this time! Any and every comment of encouragement is so appreciated.
Much love,
The not so crazy lady :)
The clouds have parted and today is a new day! Both Treatments went very well and Krista (Mitchell's new PCA) and Rebekah (Kadin and Tanner's PCA) Arrived around 2:30pm. Karin left around 3:15pm and everyone is happy and calm!! The Kids went swimming with the PCA's and Gloria and I FINALLY had a real break! After the kids ate dinner we left them in the care of Krista and Rebekah and went Bowling! I am going to post the pics on my facebook page later. We ordered a 16" pizza thinking we would have lots of left overs for tomorrow, but guess what? We ate every last bite and the two Long Island Tea's (each) were Heavenly! I think we bowled for 2 hours and we got home around 9pm. Best part is the kids were sleeping when we got home! Gloria and I had so much fun, it is just what we needed after yesterday.
Kadin, seems a lot calmer today and more attentive to me. His favorite book these days is "A Color Of His Own" by Leo Lionii and I think we read it about 20 + times today! That is also All he wanted to do while in treatment for the morning and afternoon session. Anyway, I am so happy to tell you today was GREAT and I treasure all of you that are supporting us in this time! Any and every comment of encouragement is so appreciated.
Much love,
The not so crazy lady :)
Wednesday, June 08, 2011
Hard Day......
Dear Readers,
I don't even know how to start this blog. Lets just say it was a Dove silk chocolate day (whole bag), a double whisky coke day (and I normally don't drink whisky coke, ask my friends) and anything that is considered a comfort food, day. Both treatments went fine it was outside of the treatments that put me past my threshold. The kids seem to be at each others throats and Kadin seemed to be on "speed" every time I turned around something else was happening. I came very close to going over that line, you know the line of becoming a crazy lady. I don't feel the need to list everything that went on today just that I am sooo Happy my sister was here because I really needed her to come access my situation. After the worst, or what I thought was the worst, I walked over to Gloria's room and said I really need a drink! The kids had started to settle and I gave Kadin his pills before bed, he was just getting settled and I could slowly start to feel my shoulders relaxing when a pounding on our hotel door startled me. Gloria or Karin opened the door and stated that we all needed to move into the hallway due to the "Tornado" watch! What the bleepedy bleep is going on today?? Kadin started screaming when I tried getting him out of bed, I picked all 60lbs of him up along with a pillow and headed for the hall praying this would not last long. Kadin settled in the hall and I laid him on the floor on his pillow and Karin had a blanket he could use. Ashtyn and Tanner were scared and Tanner said, "Mom, where is dad?" I said dad is a long way away and he is fine, we are the ones that have the tornado warning." Tanner then said, "Why didn't we watch the news to see that their was going to be a tornado?" I said, well we just found out about it." Ashtyn was pretty scared and I told her, "honey we don't need to be scared we have guardian angles watching over us, God will keep us safe." We were in the hall for about 1/2hour and then were told we could go back to our rooms. The kids are now all sleeping and I am, well, on the computer writing to you all. Tears are rolling down my face and I am glad this day is finally coming to a close. I love my children so much but sometimes "Autism" kicks my butt and today was one of those days. It makes it doubly hard when your in a hotel room for an extended time and your husband is 250 miles away. I am not regretting coming here, I am seeing little bits of improvement here and there and we are only a week into the treatments just imagine what 40 treatments will do!
Dear Lord, please send me a few more guardian angles and a bit more energy.
Good night!
I don't even know how to start this blog. Lets just say it was a Dove silk chocolate day (whole bag), a double whisky coke day (and I normally don't drink whisky coke, ask my friends) and anything that is considered a comfort food, day. Both treatments went fine it was outside of the treatments that put me past my threshold. The kids seem to be at each others throats and Kadin seemed to be on "speed" every time I turned around something else was happening. I came very close to going over that line, you know the line of becoming a crazy lady. I don't feel the need to list everything that went on today just that I am sooo Happy my sister was here because I really needed her to come access my situation. After the worst, or what I thought was the worst, I walked over to Gloria's room and said I really need a drink! The kids had started to settle and I gave Kadin his pills before bed, he was just getting settled and I could slowly start to feel my shoulders relaxing when a pounding on our hotel door startled me. Gloria or Karin opened the door and stated that we all needed to move into the hallway due to the "Tornado" watch! What the bleepedy bleep is going on today?? Kadin started screaming when I tried getting him out of bed, I picked all 60lbs of him up along with a pillow and headed for the hall praying this would not last long. Kadin settled in the hall and I laid him on the floor on his pillow and Karin had a blanket he could use. Ashtyn and Tanner were scared and Tanner said, "Mom, where is dad?" I said dad is a long way away and he is fine, we are the ones that have the tornado warning." Tanner then said, "Why didn't we watch the news to see that their was going to be a tornado?" I said, well we just found out about it." Ashtyn was pretty scared and I told her, "honey we don't need to be scared we have guardian angles watching over us, God will keep us safe." We were in the hall for about 1/2hour and then were told we could go back to our rooms. The kids are now all sleeping and I am, well, on the computer writing to you all. Tears are rolling down my face and I am glad this day is finally coming to a close. I love my children so much but sometimes "Autism" kicks my butt and today was one of those days. It makes it doubly hard when your in a hotel room for an extended time and your husband is 250 miles away. I am not regretting coming here, I am seeing little bits of improvement here and there and we are only a week into the treatments just imagine what 40 treatments will do!
Dear Lord, please send me a few more guardian angles and a bit more energy.
Good night!
Tuesday, June 07, 2011
Hot! Hot! Hot!
Dear Readers,
What is going on with this weather?? It is either to cold to pretend it's summer or to hot to be outside! Thank God for AC and the Target down the road where i bought my box fan! Anyway, our morning treatment or "Dive" as they call it went well and i managed to keep the boys occupied while I wrote a letter to my Grandma Leona. I continue to see little sparks of light with Kadin. I noticed today that almost every time I asked him a question his response seems to be faster For example it seems to be an immediate to 1 second delay response rather than a 5 to 10 second delay in response). This afternoon session went OK, Kadin did not want to go to the center he screamed all the way there and then he screamed in the room when we were getting ready to go in the tank. I don't know if there is anything worse than Kadin earth shattering scream inside a enclosed metal tank. i got him to settle down and proceeded to turn on the DVD player when I discovered that we forgot the DVD's. OMG What was I going to do with Kadin for an hour in this tank? Lucky for Tanner I charged the I pod so he could play games the whole time and that left me with Kadin singing songs and enduring a million pinches on my inner arm while he laid beside me in the tank. I have the bruses to prove it. Do I need to say this was the longest hour EVER. After the session we went back to the hotel and hit the pool. Gloria, bless her heart, got all the ingredients for tuna melts and drove back to the center before it closed at 5pm to back them in the oven. Yum! Yum! Thanks Gloria. Well, my sister and Karin (Mitchells PCA) are going to attempt to play cards tonight, we will see how that goes, hopefully the kids will go down without a hitch.
P.S. Karin keeps trying to get Mitchell to say her name correctly....Mitchell say Karin...... (Mitchell response) Carrot! There you go Karin is now known as Carrot.
Please don't hesitate to shoot me a message via facebook or comment on the blog site i really like hearing from you guys!!
Good night!
What is going on with this weather?? It is either to cold to pretend it's summer or to hot to be outside! Thank God for AC and the Target down the road where i bought my box fan! Anyway, our morning treatment or "Dive" as they call it went well and i managed to keep the boys occupied while I wrote a letter to my Grandma Leona. I continue to see little sparks of light with Kadin. I noticed today that almost every time I asked him a question his response seems to be faster For example it seems to be an immediate to 1 second delay response rather than a 5 to 10 second delay in response). This afternoon session went OK, Kadin did not want to go to the center he screamed all the way there and then he screamed in the room when we were getting ready to go in the tank. I don't know if there is anything worse than Kadin earth shattering scream inside a enclosed metal tank. i got him to settle down and proceeded to turn on the DVD player when I discovered that we forgot the DVD's. OMG What was I going to do with Kadin for an hour in this tank? Lucky for Tanner I charged the I pod so he could play games the whole time and that left me with Kadin singing songs and enduring a million pinches on my inner arm while he laid beside me in the tank. I have the bruses to prove it. Do I need to say this was the longest hour EVER. After the session we went back to the hotel and hit the pool. Gloria, bless her heart, got all the ingredients for tuna melts and drove back to the center before it closed at 5pm to back them in the oven. Yum! Yum! Thanks Gloria. Well, my sister and Karin (Mitchells PCA) are going to attempt to play cards tonight, we will see how that goes, hopefully the kids will go down without a hitch.
P.S. Karin keeps trying to get Mitchell to say her name correctly....Mitchell say Karin...... (Mitchell response) Carrot! There you go Karin is now known as Carrot.
Please don't hesitate to shoot me a message via facebook or comment on the blog site i really like hearing from you guys!!
Good night!
Monday, June 06, 2011
Great things happening in Madison WI!
Dear Readers,
You know how when your infant says it's first word how you freak out and make a big deal about it? Well, we were hanging out in our hotel room making dinner (you know the kind you can put in the microwave or open with a can opener)ever so quietly Mitchell managed to find the box of instant oatmeal and got a packet out and walked over to Gloria and handing her the packet said, "Want oatmeal!" Gloria screamed, "Marjorie get in here!" I went in to their room and Karin (Mitchell's PCA) and Gloria told me what happened I stated screaming, "Good Job Mitchell, you asked mom for oatmeal!" Yay Mitchell!! He had a smile on his face because we were all praising him, I turned to look at Gloria and it looked like she had tears in her eyes. I said, "Gloria, make sure you write this down." (For those of you who do not know who Mitchell is, he is my sisters 3 year old son who has Autism and speech impairment and he is also doing this Hyperbaric treatment along with my boys.)
About 20 min. before we were to leave for our afternoon apt. the cleaning lady cam to our rooms, we propped Gloria's door open so i could still have my door closed and the alarm on so Kadin could not escape. Anyway the joining room door was open and Kadin made his way over to Gloria's room when everyone had their backs turned Kadin took off out the door. As soon as I saw he was gone I ran down the hall and tried the pool door which, Thank God , was locked. I then ran out the front automatic doors to the Hotel to find Kadin out in the parking lot in his Pull-up. Do I need to say my heart was racing a mile a min? I hope to God that never happens again while we are here.
Aside from the drama our Treatments went very well, in fact I would say they were the best so far. Gloria and I were nervous about going in today due to the fact that we had not been in the chambers for two days. We were pleasantly surprised when they went so well. The one downfall was after our first "Dive", as they call it, Tanner pulled of his plastic hood and ripped the rubber around the neck resulting in a $55 dollar addition to our already huge bill. I guess I should have had an allowance for unforeseen mishaps. If their were a day that I needed a drink to help me relax it is today. Speaking of that, I need to get back to my whiskey coke!
Good night all!
You know how when your infant says it's first word how you freak out and make a big deal about it? Well, we were hanging out in our hotel room making dinner (you know the kind you can put in the microwave or open with a can opener)ever so quietly Mitchell managed to find the box of instant oatmeal and got a packet out and walked over to Gloria and handing her the packet said, "Want oatmeal!" Gloria screamed, "Marjorie get in here!" I went in to their room and Karin (Mitchell's PCA) and Gloria told me what happened I stated screaming, "Good Job Mitchell, you asked mom for oatmeal!" Yay Mitchell!! He had a smile on his face because we were all praising him, I turned to look at Gloria and it looked like she had tears in her eyes. I said, "Gloria, make sure you write this down." (For those of you who do not know who Mitchell is, he is my sisters 3 year old son who has Autism and speech impairment and he is also doing this Hyperbaric treatment along with my boys.)
About 20 min. before we were to leave for our afternoon apt. the cleaning lady cam to our rooms, we propped Gloria's door open so i could still have my door closed and the alarm on so Kadin could not escape. Anyway the joining room door was open and Kadin made his way over to Gloria's room when everyone had their backs turned Kadin took off out the door. As soon as I saw he was gone I ran down the hall and tried the pool door which, Thank God , was locked. I then ran out the front automatic doors to the Hotel to find Kadin out in the parking lot in his Pull-up. Do I need to say my heart was racing a mile a min? I hope to God that never happens again while we are here.
Aside from the drama our Treatments went very well, in fact I would say they were the best so far. Gloria and I were nervous about going in today due to the fact that we had not been in the chambers for two days. We were pleasantly surprised when they went so well. The one downfall was after our first "Dive", as they call it, Tanner pulled of his plastic hood and ripped the rubber around the neck resulting in a $55 dollar addition to our already huge bill. I guess I should have had an allowance for unforeseen mishaps. If their were a day that I needed a drink to help me relax it is today. Speaking of that, I need to get back to my whiskey coke!
Good night all!
Sunday, June 05, 2011
A day of rest...
Dear Readers,
Well, today was very uneventful....which is a good thing. :) We just went to the park and only lasted 1 hour due to the unbearable heat. When we got back to the hotel we hit the pool for a few hours then crashed in the hotel room. Tomorrow marks the begging of our first full week of treatments (10) to be exact.
Tonight, Mike (Gloria's husband) and Bret my Husband skyped and the kids got to see and talk to their dads. We are hoping to see the guys fathers day weekend and IF they can come Friday morning they will be able to sit with the boys during their afternoon treatment, which I think would be great.
Until tomorrow.....Good night!
Well, today was very uneventful....which is a good thing. :) We just went to the park and only lasted 1 hour due to the unbearable heat. When we got back to the hotel we hit the pool for a few hours then crashed in the hotel room. Tomorrow marks the begging of our first full week of treatments (10) to be exact.
Tonight, Mike (Gloria's husband) and Bret my Husband skyped and the kids got to see and talk to their dads. We are hoping to see the guys fathers day weekend and IF they can come Friday morning they will be able to sit with the boys during their afternoon treatment, which I think would be great.
Until tomorrow.....Good night!
Saturday, June 04, 2011
A Day at the Zoo
Dear Readers,
Today was our first day without having to go to the Center for treatment. Tanner said to me at the end of today, "Mom, we didn't go in the space ship today!" I told him that we only go during the week and NOT on saturday or sunday. Well, We tackled the "free" zoo today and it went rather well dispite the heat. We got some great pics of the animals and a few of the kids, this was a bit difficult because they didn't want to look at the camera and I thought you all wouldn't want to see a bunch of kids back sides. ::) We also discovered Kadin's dream play ground if you go to my facebook page you can see the worlds largest Tree house! After the zoo we went back to the hotel to cool off in the pool before dinner. I also got to have my first real break from the kids. Gloria and Karin let me do the Target and Aldi run. Yay!(yes, they have an Aldi!) I got back from shopping to be met by my sweet little boy (Kadin) with a smile and a kiss and I said, "Hi honey!" and he said, "Hi baby wolf pup!" Ok, so I guess mom and wolf pup is an honest mistake, the fact is he tried!
Today was our first day without having to go to the Center for treatment. Tanner said to me at the end of today, "Mom, we didn't go in the space ship today!" I told him that we only go during the week and NOT on saturday or sunday. Well, We tackled the "free" zoo today and it went rather well dispite the heat. We got some great pics of the animals and a few of the kids, this was a bit difficult because they didn't want to look at the camera and I thought you all wouldn't want to see a bunch of kids back sides. ::) We also discovered Kadin's dream play ground if you go to my facebook page you can see the worlds largest Tree house! After the zoo we went back to the hotel to cool off in the pool before dinner. I also got to have my first real break from the kids. Gloria and Karin let me do the Target and Aldi run. Yay!(yes, they have an Aldi!) I got back from shopping to be met by my sweet little boy (Kadin) with a smile and a kiss and I said, "Hi honey!" and he said, "Hi baby wolf pup!" Ok, so I guess mom and wolf pup is an honest mistake, the fact is he tried!
Friday, June 03, 2011
out of the mouth of babes!
Dear Readers,
Today started for me at 2:30am when Kadin woke up and decided to stay awake for the majority of the night!So we played a game of musical beds as Tanner and Ashtyn woke up and switched beds and Kadin kept going back and forth. Kadin went through the room to turn on lights and he just seemed happy as could be. I was so tired and NOT happy. On top of it all our AC was not working and I forgot to bring a fan, the room got really warm and probably was the reason for Kadin waking up. I finally got Kadin to lay beside me in bed when all of a sudden the AC kicked on and Kadin sat straight up in bed and turned his head in the direction of the noise and said, "what's that?!" I was so shocked by this because normally anything or any sounds could be going on around Kadin and he seems not to notice. I replied, now happy, that was the AC honey." I have not heard Kadin use expressive language like this before and he responded so quickly after he heard the sound. Our morning session went well, Kadin fussed a bit but I think it was because he was tired and when he is tired he has less of a tolerance to everything. Our Afternoon session went really good to and I got a few more chapters in my book read. After we got back we went to the pool and The kids played till dinner time. I have to say I was completely wiped out by dinner time. Running on almost no sleep while the kids seem to be running on Energizer batteries. Looking forward to my bed and a weekend with no treatments, maybe tomorrow we can relax a bit and just enjoy each other!
Today started for me at 2:30am when Kadin woke up and decided to stay awake for the majority of the night!So we played a game of musical beds as Tanner and Ashtyn woke up and switched beds and Kadin kept going back and forth. Kadin went through the room to turn on lights and he just seemed happy as could be. I was so tired and NOT happy. On top of it all our AC was not working and I forgot to bring a fan, the room got really warm and probably was the reason for Kadin waking up. I finally got Kadin to lay beside me in bed when all of a sudden the AC kicked on and Kadin sat straight up in bed and turned his head in the direction of the noise and said, "what's that?!" I was so shocked by this because normally anything or any sounds could be going on around Kadin and he seems not to notice. I replied, now happy, that was the AC honey." I have not heard Kadin use expressive language like this before and he responded so quickly after he heard the sound. Our morning session went well, Kadin fussed a bit but I think it was because he was tired and when he is tired he has less of a tolerance to everything. Our Afternoon session went really good to and I got a few more chapters in my book read. After we got back we went to the pool and The kids played till dinner time. I have to say I was completely wiped out by dinner time. Running on almost no sleep while the kids seem to be running on Energizer batteries. Looking forward to my bed and a weekend with no treatments, maybe tomorrow we can relax a bit and just enjoy each other!
Thursday, June 02, 2011
Never a dull moment
Dear Readers,
This morning session went really well, I found out we can use our cell phones in the chamber so I called my mom to let her know how we were doing. I also felt like I had my act together as far as stuff goes to entertain the boys while we passed away the hour.
Here was my check list:
1 fully loaded I-Pod....check
1 magna doodle .......check
cell phone..........check
note book and pen......check
2 DVD for video players.......check
Well as prepared as I thought I was I didn't bring two mayor things...wipes and pull -ups for any unfortunate accidents. Can you guess what I am going to write next? Well "Old Faithful (Kadin) irrupted 1 1/2 min. before our session was done. Of course they can't just open the door due to the cabin pressure, so needless to say we were trapped in a stink bomb capsule for about 10 min.
Kadin got to the center fully clothed and left with a t-shirt and pull up.
He sure has his way of putting his stamp on every situation.
We got back to the Hotel around 10am just in time to meet the deputies from Dane county. Since Tanner and Kadin are in the program "Project Lifesaver" they are over seeing their stay and will respond to any 911 calls while we are visiting WI. They also wanted to check their equipment on the boys locating devices to make sure they worked properly.
Second session was at 1:45pm
This was treatment #4 and when we arrived and were getting settled and ready to enter the blue tanks I asked the Dr. "IS it possible to see some positive results as soon a 3 sessions?" He laughed and said, "I was just going to ask you if you have seen anything yet in the boys." I told him that I felt like Something good was going on with Kadin but I chocked it up to wishful thinking. He told me people usually think that in the beginning but if i could keep a journal about little changes I see as we go through the 40 treatments that in the end I would see it was indeed a result of the treatment. One example of something is while we were in the tank this afternoon, I got Kadin to look at me in my eyes and I said, "I love you so much!" and without turning away Kadin said right back, "I love you so much!" and there was a point in the chamber that Tanner and Kadin locked eyes and it seemed to me that Kadin was truly looking at Tanner and Tanner said, "Hi Kadin and with out looking away from Tanner Kadin said, "Hi Tanner" Tanner then proceeded to open his mouth and say ooooooooh and Kadin smiled and imitate him and for a brief moment they were enjoying a back and forth game together. I also showed Kadin a picture of Bret and right away his face changed to excitement and he said, "Hi DAD!" Then he followed it with "Bye Dad!" I was fighting back tears a few times today and trying to stay focused and just get through the treatments and see what may come. So far I think we will be seeing Great things! I can't help but continue to thank God for this opportunity. Keep the prayers coming and I will keep sharing our blessings with you all.
P.S. In case any of you are wondering what 100% Oxygen smells like, Tanner said when asked, "Well, it smells like flowers!" :)
This morning session went really well, I found out we can use our cell phones in the chamber so I called my mom to let her know how we were doing. I also felt like I had my act together as far as stuff goes to entertain the boys while we passed away the hour.
Here was my check list:
1 fully loaded I-Pod....check
1 magna doodle .......check
cell phone..........check
note book and pen......check
2 DVD for video players.......check
Well as prepared as I thought I was I didn't bring two mayor things...wipes and pull -ups for any unfortunate accidents. Can you guess what I am going to write next? Well "Old Faithful (Kadin) irrupted 1 1/2 min. before our session was done. Of course they can't just open the door due to the cabin pressure, so needless to say we were trapped in a stink bomb capsule for about 10 min.
Kadin got to the center fully clothed and left with a t-shirt and pull up.
He sure has his way of putting his stamp on every situation.
We got back to the Hotel around 10am just in time to meet the deputies from Dane county. Since Tanner and Kadin are in the program "Project Lifesaver" they are over seeing their stay and will respond to any 911 calls while we are visiting WI. They also wanted to check their equipment on the boys locating devices to make sure they worked properly.
Second session was at 1:45pm
This was treatment #4 and when we arrived and were getting settled and ready to enter the blue tanks I asked the Dr. "IS it possible to see some positive results as soon a 3 sessions?" He laughed and said, "I was just going to ask you if you have seen anything yet in the boys." I told him that I felt like Something good was going on with Kadin but I chocked it up to wishful thinking. He told me people usually think that in the beginning but if i could keep a journal about little changes I see as we go through the 40 treatments that in the end I would see it was indeed a result of the treatment. One example of something is while we were in the tank this afternoon, I got Kadin to look at me in my eyes and I said, "I love you so much!" and without turning away Kadin said right back, "I love you so much!" and there was a point in the chamber that Tanner and Kadin locked eyes and it seemed to me that Kadin was truly looking at Tanner and Tanner said, "Hi Kadin and with out looking away from Tanner Kadin said, "Hi Tanner" Tanner then proceeded to open his mouth and say ooooooooh and Kadin smiled and imitate him and for a brief moment they were enjoying a back and forth game together. I also showed Kadin a picture of Bret and right away his face changed to excitement and he said, "Hi DAD!" Then he followed it with "Bye Dad!" I was fighting back tears a few times today and trying to stay focused and just get through the treatments and see what may come. So far I think we will be seeing Great things! I can't help but continue to thank God for this opportunity. Keep the prayers coming and I will keep sharing our blessings with you all.
P.S. In case any of you are wondering what 100% Oxygen smells like, Tanner said when asked, "Well, it smells like flowers!" :)
Wednesday, June 01, 2011
I think the hardest part is behind us!
Dear Readers,
Well today was an experience, our first treatment was at 10:15am at the Center. The boys were troopers, we were told that the first treatment is the worst and that it would affect our ears more so than the treatments to come. This was an UNDERSTATEMENT! I was put in the Big Blue Tank with the boys and they each had a plastic hood over their head. The only way I can explain the feeling is that it is like descending in a airplane and you have a horrible ear ache. I thought I was going to scream! Both the boys were crying and I thought this is hell! All I could do was keep Kadin from pulling out the Oxygen tubes. After about 15min. it started to get better. I was sure glad when that session ended. The boys ears seemed to go back to normal but I had to run to Target to get some sudafedrin, my ears didn't feel normal for about 3 hours after the treatment. Our afternoon session at 3:45pm was 10,000 times better. Turns out they were right, the first session was the worst and we are told that from here on out they will only get easier to tolerate. Kadin and Tanner were actually laughing and laying down to rest in our second session. I was so re-leaved that this session went so well and I am looking forward to the days ahead.
Well today was an experience, our first treatment was at 10:15am at the Center. The boys were troopers, we were told that the first treatment is the worst and that it would affect our ears more so than the treatments to come. This was an UNDERSTATEMENT! I was put in the Big Blue Tank with the boys and they each had a plastic hood over their head. The only way I can explain the feeling is that it is like descending in a airplane and you have a horrible ear ache. I thought I was going to scream! Both the boys were crying and I thought this is hell! All I could do was keep Kadin from pulling out the Oxygen tubes. After about 15min. it started to get better. I was sure glad when that session ended. The boys ears seemed to go back to normal but I had to run to Target to get some sudafedrin, my ears didn't feel normal for about 3 hours after the treatment. Our afternoon session at 3:45pm was 10,000 times better. Turns out they were right, the first session was the worst and we are told that from here on out they will only get easier to tolerate. Kadin and Tanner were actually laughing and laying down to rest in our second session. I was so re-leaved that this session went so well and I am looking forward to the days ahead.
Tuesday, May 31, 2011
I think I need a 5 hour boost!
Dear Readers,
So much to do before we take off this afternoon! Just finishing packing and then I going to put on my cleaning lady hat and get this place in shape, I just hate leaving my house messy when we go on trips. Boys are at their last day of school and we hope to leave soon after they get home. However, if Kadin can get his foot in the door for 15 min. this house will be turned upside down again. oh well, at least I will have tried. :) I am hoping to update the blog every evening around 9pm after the kids are down for bed. Feel free to ask any questions or post comments along the way it will only make the blogs more interesting. next time I write it will be from Wisconsin.
So much to do before we take off this afternoon! Just finishing packing and then I going to put on my cleaning lady hat and get this place in shape, I just hate leaving my house messy when we go on trips. Boys are at their last day of school and we hope to leave soon after they get home. However, if Kadin can get his foot in the door for 15 min. this house will be turned upside down again. oh well, at least I will have tried. :) I am hoping to update the blog every evening around 9pm after the kids are down for bed. Feel free to ask any questions or post comments along the way it will only make the blogs more interesting. next time I write it will be from Wisconsin.
Thursday, May 26, 2011
Getting ready to embark on a new adventure!
Dear Readers,
Well, today is Thrusday and I am trying to wrap up all the loose ends before our trip. Thinking of being in a hotel room for 4 weeks is giving me a slight panic attack, but I think the excitement of trying this new treatment with the boys trumps all. At this point any improvment for Kadin will be welcomed! I thank God that he has granted us this opportunity.
Well, today is Thrusday and I am trying to wrap up all the loose ends before our trip. Thinking of being in a hotel room for 4 weeks is giving me a slight panic attack, but I think the excitement of trying this new treatment with the boys trumps all. At this point any improvment for Kadin will be welcomed! I thank God that he has granted us this opportunity.
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